Policy Statement NORD Letter to Nebraska Banking, Commerce and Insurance Committee Regarding Step Therapy Legislation
Policy Statement NORD letter to Oregon House Committee on Health Care in support of HB 2508, a bill to improve telehealth access
Policy Statement NORD Letter to the Arkansas House Public Health, Welfare and Labor Committee regarding step therapy reform
Policy Statement Coalition comment letter on proposed extension of Arizona’s 1115 Demonstration Project
Policy Statement Coalition letter to the Virginia House of Delegates in support of a reinsurance program for Virginia’s health insurance marketplace.
Policy Statement Coalition letter to Chair of the Oregon Senate Committee on Health Care regarding copay assistance
Policy Statement NORD Letter of Support to the Senate Finance Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS
Policy Statement NORD Letter of Support to the Senate HELP Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS
Policy Statement NORD, the ALS Association, Muscular Dystrophy Association and Cystic Fibrosis Foundation letter to CDC Director, Dr. Rochelle Walensky, requesting additional guidance from CDC to ensure rare disease patients have access to the COVID-19 vaccine
Policy Statement NORD Letter to the Arizona Senate Health and Human Serivces Committee regarding step therapy reform
Policy Statement NORD joins a coalition letter to the Minnesota House Commerce Finance and Policy Committee in support of House File 633
Policy Statement NORD, the ALS Association, Muscular Dystrophy Association and Cystic Fibrosis Foundation Letter to the Advisory Committee on Immunization Practices (ACIP), Requesting Additional Guidance to Ensure Rare Disease Patients Have Access to the COVID-19 Vaccine
Policy Statement NORD letter to the Oregon House Committee on Health Care regarding utilization management
Policy Statement NORD and several patient organizations submit letter of support to the California Senate Committee on Health for SB 247, a bill to establish a Rare Disease Advisory Council (RDAC) and ombudsperson
Policy Statement NORD, Hemohilia of SC and several other patient organizations submit a letter of support to Chairman Howard on H3956, to establish a Rare Disease Advisory Council in South Carolina
Policy Statement NORD Submits Letter of Supporting Telehealth for House Energy & Commerce Health Subcommittee Hearing: The Future of Telehealth: How COVID-19 Is Changing the Delivery of Virtual Care
Policy Statement NORD letter to Governor Northam of Virginia requesting he sign HB 1995 and HB 2332 into law to create an RDAC and state-based reinsurance program
Policy Statement NORD and 21 Other Organizations Send Letter to House Labor, HHS Appropriations Subcommittee Regarding Increased Funding for Newborn Screening
Policy Statement NORD and 21 Other Organizations Send Letter to Senate Labor, HHS Appropriations Subcommittee Regarding Increased Funding for Newborn Screening
Policy Statement NORD Letter to the Arizona House Health and Human Services Committee regarding step therapy reform
Policy Statement NORD and 13 additional patient organizations submit letter expressing continued support for Medicaid expansion in Arkansas
Policy Statement NORD, American Heart Association, and 50 other Patient Organizations Sign on to Letter to House Labor, HHS Subcommittee on Appropriations Requesting Increased Funding for CDC’s National Center for Chronic Disease Prevention and Health Promotion
Policy Statement NORD, American Heart Association, and 50 other Patient Organizations Sign on to Letter to Senate Labor, HHS Subcommittee on Appropriations Requesting Increased Funding for CDC’s National Center for Chronic Disease Prevention and Health Promotion