Search Results for: orgs_by_letter.html

Policy Statement

NORD letter of thanks to Senator Hewitt, cosponsor of Louisiana HB 460, a bill to create a Rare Disease Advisory Council

Policy Statement

NORD and 27 other patient organizations submit a letter of support to the Louisiana Senate Committee on Health and Welfare in support of House Bill 460 to establish an RDAC

Policy Statement

NORD and eighteen patient organizations send letter urging CMS to rescind the TennCare III 1115 waiver

Policy Statement

NORD and seven other patient organizations send a letter to Members of the Ohio Senate Oversight and Reform Committee expressing continued concern that SB17 would harm access to health care for patients

Policy Statement

NORD and nine other patient organizations submit a letter of support to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council

Policy Statement

NORD and 27 other patient organizations submit a letter of support to New Jersey Governor urging him to sign A4016/S2682 into law, to create a Rare Disease Advisory Council (RDAC)

Policy Statement

NORD joins several patient organizations in a letter to the Administration with recommendations on the No Surprises Act interim final rule

Policy Statement

NORD and 28 other patient organizations submit a letter of support to Louisiana Governor urging him to sign HB 460 into law, to establish an RDAC

Policy Statement

NORD submits letter of support to Rhode Island’s Speaker of the House in support of Senate Bill 302/House Bill 5704, step therapy reform legislation

Policy Statement

NORD and 13 patient organizations submit letter opposing language within the proposed budget that would harm access to care for Ohioans with Medicaid coverage

Policy Statement

NORD submits letter of support to the PA Senate Banking and Insurance Committee in support of Senate Bill 225, step therapy and prior authorization reform legislation

Policy Statement

NORD and seventeen coalition partners submit letter on the importance of Medicaid expansion in response to Texas’s proposed 1115 waiver

Policy Statement

NORD signs onto a coalition letter of support with 17 other patient organizations in support of California AB 347, step therapy reform legislation

Policy Statement

NORD and 30 other patient organizations submit a letter of support to the California Assembly Committee on Health in support of Senate Bill 247 to establish an RDAC

Policy Statement

NORD and 30 other patient organizations submit a letter of support to the California Assembly Appropriations Committee in support of Senate Bill 247 to establish an RDAC

Policy Statement

NORD joins a letter to Congressional Leaders with over 400 organizations supporting permanent telehealth Medicare reforms

Policy Statement

NORD joins letter to Congressional leadership along with 54 patient organizations asking that provisions to improve medication access in emergencies is included in upcoming pandemic preparedness legislation.

Policy Statement

NORD joins a letter with other patient organizations to Chairwoman Murray and Chairman Pallone regarding their request for information to design a public health insurance option

Policy Statement

NORD joins a letter with several other patient organizations asking House and Senate leadership to prioritize making the advance premium tax credits permanent in the reconciliation package

Policy Statement

NORD joins a letter to Congressional leadership to support a national paid family and medical leave program

Policy Statement

NORD joins a comment letter to the WA State Office of the Insurance Commissioner on the draft for health care sharing ministries

Policy Statement

NORD and 30 other patient organizations submit a letter of support to the California Assembly in support of Senate Bill 247 to establish an RDAC

Policy Statement

NORD Sends Letter to Governor Scott: Vermont Rare Disease Advisory Council Signature (H.46)

Policy Statement

NORD Letter to Northeast Public Health Collaborative on State RDAC Resources

Policy Statement

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Search Results for: orgs_by_letter.html

NORD letter of thanks to Senator Hewitt, cosponsor of Louisiana HB 460, a bill to create a Rare Disease Advisory Council

NORD and 27 other patient organizations submit a letter of support to the Louisiana Senate Committee on Health and Welfare in support of House Bill 460 to establish an RDAC

NORD and eighteen patient organizations send letter urging CMS to rescind the TennCare III 1115 waiver

NORD and seven other patient organizations send a letter to Members of the Ohio Senate Oversight and Reform Committee expressing continued concern that SB17 would harm access to health care for patients

NORD and nine other patient organizations submit a letter of support to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council

NORD and 27 other patient organizations submit a letter of support to New Jersey Governor urging him to sign A4016/S2682 into law, to create a Rare Disease Advisory Council (RDAC)

NORD joins several patient organizations in a letter to the Administration with recommendations on the No Surprises Act interim final rule

NORD and 28 other patient organizations submit a letter of support to Louisiana Governor urging him to sign HB 460 into law, to establish an RDAC

NORD submits letter of support to Rhode Island’s Speaker of the House in support of Senate Bill 302/House Bill 5704, step therapy reform legislation

NORD and 13 patient organizations submit letter opposing language within the proposed budget that would harm access to care for Ohioans with Medicaid coverage

NORD submits letter of support to the PA Senate Banking and Insurance Committee in support of Senate Bill 225, step therapy and prior authorization reform legislation

NORD and seventeen coalition partners submit letter on the importance of Medicaid expansion in response to Texas’s proposed 1115 waiver

NORD signs onto a coalition letter of support with 17 other patient organizations in support of California AB 347, step therapy reform legislation

NORD and 30 other patient organizations submit a letter of support to the California Assembly Committee on Health in support of Senate Bill 247 to establish an RDAC

NORD and 30 other patient organizations submit a letter of support to the California Assembly Appropriations Committee in support of Senate Bill 247 to establish an RDAC

NORD joins a letter to Congressional Leaders with over 400 organizations supporting permanent telehealth Medicare reforms

NORD joins letter to Congressional leadership along with 54 patient organizations asking that provisions to improve medication access in emergencies is included in upcoming pandemic preparedness legislation.

NORD joins a letter with other patient organizations to Chairwoman Murray and Chairman Pallone regarding their request for information to design a public health insurance option

NORD joins a letter with several other patient organizations asking House and Senate leadership to prioritize making the advance premium tax credits permanent in the reconciliation package

NORD joins a letter to Congressional leadership to support a national paid family and medical leave program

NORD joins a comment letter to the WA State Office of the Insurance Commissioner on the draft for health care sharing ministries

NORD and 30 other patient organizations submit a letter of support to the California Assembly in support of Senate Bill 247 to establish an RDAC

NORD Sends Letter to Governor Scott: Vermont Rare Disease Advisory Council Signature (H.46)

NORD Letter to Northeast Public Health Collaborative on State RDAC Resources

NORD Signs-On to Letter Asking Congress to Support the NIH

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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Search Results for: orgs_by_letter.html

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