Search Results for: orgs_by_letter.html/page/19/about:blank

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extramammary Paget disease

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Paget disease of the nipple

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inclusion body myopathy with Paget disease of bone and frontotemporal dementia

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Langerhans cell histiocytosis

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juvenile Paget disease

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Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

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localized pagetoid reticulosis

NORD Rare Disease Report

Paget’s Disease of the Breast

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Paget disease of bone 2, early-onset

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spastic paraplegia-Paget disease of bone syndrome

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Living With Trichotillomania: Pageant Queen Sarah Pennington

NORD Rare Disease Report

Paget’s Disease

News

One-pager from NORD on Opposition to Right to Try Act

Policy Statement

NORD joins a coalition one-pager in Oklahoma to support House Bill 3737, regarding copay accumulator adjustment programs

Policy Statement

Coalition one-pager to California in support of AB 2144, to reform utilization management protocols

Policy Statement

Coalition one-pager regarding step therapy reform legislation legislation in Pennsylvania

Policy Statement

Updated NORD one-pager detailing our opposition to the Right to Try Act

Policy Statement

NORD one-pager emphasizing our opposition to the Right to Try Act

Policy Statement

NORD one-pager on Rare Disease Advisory Councils (RDACs).

Policy Statement

Coalition one-pager on Michigan copay accumulators.

Policy Statement

Coalition one-pager on Nebraska step therapy reform

Policy Statement

Coalition one-pager in support of Arizona Senate Bill 1270, a bill regarding step therapy protocols

Policy Statement

Coalition one-pager opposing South Dakota Senate Bill 87, a bill with serious risks for South Dakotans with pre-existing conditions

Policy Statement

NORD signs onto a coalition one pager with numerous other patient organizations in support of the Safe Step Act of 2021 (S.464)

Policy Statement

NORD and coalition partners one pager in support of Illinois House Bill 1779 to require coverage of biomarker testing

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