Search Results for: rdbdetail_abstract_html@disname=Adrenoleukodystrophy/page/2/

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adrenoleukodystrophy

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X-linked cerebral adrenoleukodystrophy

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extramammary Paget disease

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Paget disease of the nipple

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NORD and Partners Publish Abstract Based on Web-Based Hemophilia A Educational Initiative for Patients, Caregivers and HCPs

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inclusion body myopathy with Paget disease of bone and frontotemporal dementia

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juvenile Paget disease

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Research Grants for Rare Disease Research Available from National Organization for Rare Disorders (NORD)

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NORD Announces Research Grants Available for Study of Rare Diseases

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Miss Connecticut Talks to NORD about Rare Diseases, the Miss America Pageant, and Voting for America’s Choice

Rare Disease Video

Adrenoleukodystrophy, Taylor’s Story

Rare Disease Video

Adrenoleukodystrophy

NORD Rare Disease Report

X-Linked Adrenoleukodystrophy

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localized pagetoid reticulosis

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peroxisome biogenesis disorder 1B

NORD Rare Disease Report

Paget’s Disease of the Breast

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Paget disease of bone 2, early-onset

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spastic paraplegia-Paget disease of bone syndrome

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Current Funding Opportunity: NORD Research Grants for Rare Diseases

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Living With Trichotillomania: Pageant Queen Sarah Pennington

NORD Rare Disease Report

Paget’s Disease

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One-pager from NORD on Opposition to Right to Try Act

Policy Statement

NORD joins a coalition one-pager in Oklahoma to support House Bill 3737, regarding copay accumulator adjustment programs

Policy Statement

Coalition one-pager to California in support of AB 2144, to reform utilization management protocols

Policy Statement

Coalition one-pager regarding step therapy reform legislation legislation in Pennsylvania

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