Search Results for: rdbdetail_abstract_html@disname=Amyloidosis/page/2/

Patient Assistance Program

Amyloidosis Medical Assistance

Sponsored Clinical Trial

Hereditary Amyloidosis

NORD Rare Disease Report

Paget’s Disease of the Breast

Resource

Paget disease of bone 2, early-onset

Resource

spastic paraplegia-Paget disease of bone syndrome

Resource

Muckle-Wells syndrome

Resource

ADan amyloidosis

Patient Organization

Amyloidosis Research Consortium, Inc. (ARC)

Patient Organization

Amyloidosis Support Groups

Resource

cerebral amyloid angiopathy

News

Current Funding Opportunity: NORD Research Grants for Rare Diseases

News

Living With Trichotillomania: Pageant Queen Sarah Pennington

NORD Rare Disease Report

Paget’s Disease

News

One-pager from NORD on Opposition to Right to Try Act

News

NORD Awards 2025 Seed Grants to Advance Breakthroughs in Rare Disease Research

Resource

cerebral amyloid angiopathy, APP-related

Resource

Gerstmann-Straussler-Scheinker syndrome

Policy Statement

NORD joins a coalition one-pager in Oklahoma to support House Bill 3737, regarding copay accumulator adjustment programs

Policy Statement

Coalition one-pager to California in support of AB 2144, to reform utilization management protocols

Policy Statement

Coalition one-pager regarding step therapy reform legislation legislation in Pennsylvania

Policy Statement

Updated NORD one-pager detailing our opposition to the Right to Try Act

Policy Statement

NORD one-pager emphasizing our opposition to the Right to Try Act

Policy Statement

NORD one-pager on Rare Disease Advisory Councils (RDACs).

Policy Statement

Coalition one-pager on Michigan copay accumulators.

Policy Statement

Coalition one-pager on Nebraska step therapy reform