News Rare Disease Patients and Families Tell CMS to Implement the Inflation Reduction Act in a Way that Works for Our Community
News Father & Daughter Interview: The Legacy of #Running4Rare from the Perspective of the Family Who Started It All
News Changes to Medicare for 2025 and Beyond: Important Information for the Rare Disease Community Ahead of Open Enrollment
News National Organization for Rare Disorders (NORD) Announces $85,000 in Grant Funding for Amyloidosis and Levy-Yeboa Syndrome
News NORD CEO Statement: Navigating Proposed Policy Changes and Their Impact on Rare Disease Advocacy