Policy Statement NORD Signs-On to One-Pager in Support of Virginia SB376/HB946 Relating to Patient Out-of-Pocket Costs
News NORD CEO Statement on FDA Draft Guidance for the Plausible Mechanism Framework for Individualized Genetic Therapies
News Statement from Pamela Gavin, CEO, National Organization for Rare Disorders (NORD) on the Senate Failure to Approve the Give Kids a Chance Act By Year-End