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NORD Expands and Enhances its Rare Disease Database®, a Primary Resource for Millions of People Affected by Rare Diseases

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Giving Spotlight: HomeServe USA Leadership and Employees Donate More Than $26,000 to NORD

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Search Results for: rdbdetail_abstract_html_disname=Encephalocele/page/2//page/1//page/2//page/3//page/8//page/7/about:blank/page/2//page/3//page/1//page/2//page/3//page/4//page/8//page/7//page/6/

NORD Expands and Enhances its Rare Disease Database®, a Primary Resource for Millions of People Affected by Rare Diseases

Rare Disease Cures Accelerator-Data and Analytics Platform – Logo Development Request for Proposal

Highlights from #NORDSummit Session: Mental Health and Rare Cancers

New Resources on Genetic Testing

National Organization for Rare Disorders and OpenEvidence Partner to Bring AI-Powered Rare Disease Resources to Clinicians and Patients Worldwide

Cutaneous T-Cell Lymphomas

Hereditary Hyperphosphatasia

Creative Collaborations May Be Key to Reducing Chemotherapy Risks

Proposed Rules for Health Insurance Market Reforms and Essential Health Benefits

30 Years After the Orphan Drug Act: It Still Takes Too Long for People with Rare Diseases to Get an Accurate Diagnosis

Trivia Can Save Lives: How a Jeopardy Question Raised Awareness of a Rare Disease

Are Civility and Mature Behavior Really Too Much to Expect?

Knowing More About Noonan

Medical Research Should Be Everyone’s Priority

Join NORD to Celebrate Rare Disease Day

Can Crowdfunding Help Cure a Rare Disease? Cure Black Bone Disease: Time Is Running Out.

Global Voice for Rare Disease Patients Launches Today: Rare Diseases International

Q & A with Russ Illes, Author of Duct Tape Won’t Fix This

CMS Turns 50!

Rare Disease Report and NORD Announce Editorial Collaboration

Giving Spotlight: Paula Mann Honors Son, Garrett, with Donation to NORD

NORD Named Charity of the Week By The Week Magazine

American Plasma Users Coalition (A-PLUS) Applauds Recent Move by Department of Health and Human Services to Limit Out-of-Pocket Costs

Registries for Rare Diseases: Involve the Patient

Giving Spotlight: HomeServe USA Leadership and Employees Donate More Than $26,000 to NORD

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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