Search Results for: rdbdetail_abstract_html_disname=Encephalocele/page/2//page/1//page/2//page/8//page/1//page/8//page/1//page/2//page/3//page/4//page/5//page/1//page/8/about:blank

NORD Rare Disease Report

Paget’s Disease

News

One-pager from NORD on Opposition to Right to Try Act

Policy Statement

NORD joins a coalition one-pager in Oklahoma to support House Bill 3737, regarding copay accumulator adjustment programs

Policy Statement

Coalition one-pager to California in support of AB 2144, to reform utilization management protocols

Policy Statement

Coalition one-pager regarding step therapy reform legislation legislation in Pennsylvania

Policy Statement

Updated NORD one-pager detailing our opposition to the Right to Try Act

Policy Statement

NORD one-pager emphasizing our opposition to the Right to Try Act

Policy Statement

NORD one-pager on Rare Disease Advisory Councils (RDACs).

Policy Statement

Coalition one-pager on Michigan copay accumulators.

Policy Statement

Coalition one-pager on Nebraska step therapy reform

Policy Statement

Coalition one-pager in support of Arizona Senate Bill 1270, a bill regarding step therapy protocols

Policy Statement

Coalition one-pager opposing South Dakota Senate Bill 87, a bill with serious risks for South Dakotans with pre-existing conditions

Policy Statement

NORD signs onto a coalition one pager with numerous other patient organizations in support of the Safe Step Act of 2021 (S.464)

Policy Statement

NORD and coalition partners one pager in support of Illinois House Bill 1779 to require coverage of biomarker testing

Policy Statement

NORD joins a one pager with several other patient organizations in support of the Safe Step Act (S.464 and H.R.2163)

Policy Statement

NORD one pager on step therapy patient protections at the state and federal level

Policy Statement

NORD joins a one pager with other organizations on paid family and medical leave

Policy Statement

NORD joins a one pager with other advocacy organizations on Minnesota SF 365/ HF 633 to help patients manage out-of-pocket costs

Policy Statement

NORD joins a one pager with other patient advocacy organizations in support of Arizona’s House Bill 2144 on biomarker testing coverage

Policy Statement

NORD joins a one pager with other patient advocacy organizations in support of Kentucky’s Senate Bill 140 on step therapy reform

Policy Statement

NORD and five other patient organizations issue one-pager on the importance of biomarker testing and precision medicine

Resource

Coloring Pages

Resource

Rare Disease Advisory Council – One Pager

Policy Statement

NORD and other patient and provider groups sign onto a one-pager to express support for HB 4131, legislation that would improve telehealth access in MI

Patient Organization

Extramammary Paget’s Disease Support Group: MyEMPD

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Search Results for: rdbdetail_abstract_html_disname=Encephalocele/page/2//page/1//page/2//page/8//page/1//page/8//page/1//page/2//page/3//page/4//page/5//page/1//page/8/about:blank

Paget’s Disease

One-pager from NORD on Opposition to Right to Try Act

NORD joins a coalition one-pager in Oklahoma to support House Bill 3737, regarding copay accumulator adjustment programs

Coalition one-pager to California in support of AB 2144, to reform utilization management protocols

Coalition one-pager regarding step therapy reform legislation legislation in Pennsylvania

Updated NORD one-pager detailing our opposition to the Right to Try Act

NORD one-pager emphasizing our opposition to the Right to Try Act

NORD one-pager on Rare Disease Advisory Councils (RDACs).

Coalition one-pager on Michigan copay accumulators.

Coalition one-pager on Nebraska step therapy reform

Coalition one-pager in support of Arizona Senate Bill 1270, a bill regarding step therapy protocols

Coalition one-pager opposing South Dakota Senate Bill 87, a bill with serious risks for South Dakotans with pre-existing conditions

NORD signs onto a coalition one pager with numerous other patient organizations in support of the Safe Step Act of 2021 (S.464)

NORD and coalition partners one pager in support of Illinois House Bill 1779 to require coverage of biomarker testing

NORD joins a one pager with several other patient organizations in support of the Safe Step Act (S.464 and H.R.2163)

NORD one pager on step therapy patient protections at the state and federal level

NORD joins a one pager with other organizations on paid family and medical leave

NORD joins a one pager with other advocacy organizations on Minnesota SF 365/ HF 633 to help patients manage out-of-pocket costs

NORD joins a one pager with other patient advocacy organizations in support of Arizona’s House Bill 2144 on biomarker testing coverage

NORD joins a one pager with other patient advocacy organizations in support of Kentucky’s Senate Bill 140 on step therapy reform

NORD and five other patient organizations issue one-pager on the importance of biomarker testing and precision medicine

Coloring Pages

Rare Disease Advisory Council – One Pager

NORD and other patient and provider groups sign onto a one-pager to express support for HB 4131, legislation that would improve telehealth access in MI

Extramammary Paget’s Disease Support Group: MyEMPD

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Search Results for: rdbdetail_abstract_html_disname=Encephalocele/page/2//page/1//page/2//page/8//page/1//page/8//page/1//page/2//page/3//page/4//page/5//page/1//page/8/about:blank

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