Search Results for: reports_by_letter.html

Policy Statement

NORD submits letter of support to the PA Senate Banking and Insurance Committee in support of Senate Bill 225, step therapy and prior authorization reform legislation

Policy Statement

NORD and seventeen coalition partners submit letter on the importance of Medicaid expansion in response to Texas’s proposed 1115 waiver

Policy Statement

NORD signs onto a coalition letter of support with 17 other patient organizations in support of California AB 347, step therapy reform legislation

Policy Statement

NORD and 30 other patient organizations submit a letter of support to the California Assembly Committee on Health in support of Senate Bill 247 to establish an RDAC

Policy Statement

NORD and 30 other patient organizations submit a letter of support to the California Assembly Appropriations Committee in support of Senate Bill 247 to establish an RDAC

Policy Statement

NORD joins a letter to Congressional Leaders with over 400 organizations supporting permanent telehealth Medicare reforms

Policy Statement

NORD joins letter to Congressional leadership along with 54 patient organizations asking that provisions to improve medication access in emergencies is included in upcoming pandemic preparedness legislation.

Policy Statement

NORD joins a letter with other patient organizations to Chairwoman Murray and Chairman Pallone regarding their request for information to design a public health insurance option

Policy Statement

NORD joins a letter with several other patient organizations asking House and Senate leadership to prioritize making the advance premium tax credits permanent in the reconciliation package

Policy Statement

NORD joins a letter to Congressional leadership to support a national paid family and medical leave program

Policy Statement

NORD joins a comment letter to the WA State Office of the Insurance Commissioner on the draft for health care sharing ministries

Policy Statement

NORD and 30 other patient organizations submit a letter of support to the California Assembly in support of Senate Bill 247 to establish an RDAC

Policy Statement

NORD Sends Letter to Governor Scott: Vermont Rare Disease Advisory Council Signature (H.46)

Policy Statement

NORD Letter to Northeast Public Health Collaborative on State RDAC Resources

Policy Statement

NORD Signs-On to Letter Asking Congress to Support the NIH

Policy Statement

NORD Signs-on to Ad-Hoc Letter to Support NIH Funding for Fiscal Year 2026

Policy Statement

NORD joins letter urging CMS to implement appropriate guardrails on utilization management in Part D

Policy Statement

NORD joins leading patient groups in letter to Congress urging protection for Medicaid during budget reconciliation process

Policy Statement

NORD Joins Over 100 Patient Organizations in Letter Urging Congress to Fully Fund Congressionally Directed Medical Research Programs

Policy Statement

NORD signs-on to letter supporting the Clinical Trial Modernization Act (H.R. 8412)

Policy Statement

NORD Sends Letter to New York State Department of Health Commissioner Asking for a Permanent NY RDAC in FY26

Policy Statement

NORD signs on letter supporting the passage of the PASTEUR Act

Policy Statement

NORD Signs on to Letter of Support for the Innovation in Pediatric Drugs Act of 2024 (S. 4905)

Policy Statement

NORD Responds to Letter of False Accusations Sent to Our Patient Advocacy Members

Policy Statement

NORD Issues Letter of Support for A10292 (Paulin) – Creating a Permanent RDAC in New York State

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Search Results for: reports_by_letter.html

NORD submits letter of support to the PA Senate Banking and Insurance Committee in support of Senate Bill 225, step therapy and prior authorization reform legislation

NORD and seventeen coalition partners submit letter on the importance of Medicaid expansion in response to Texas’s proposed 1115 waiver

NORD signs onto a coalition letter of support with 17 other patient organizations in support of California AB 347, step therapy reform legislation

NORD and 30 other patient organizations submit a letter of support to the California Assembly Committee on Health in support of Senate Bill 247 to establish an RDAC

NORD and 30 other patient organizations submit a letter of support to the California Assembly Appropriations Committee in support of Senate Bill 247 to establish an RDAC

NORD joins a letter to Congressional Leaders with over 400 organizations supporting permanent telehealth Medicare reforms

NORD joins letter to Congressional leadership along with 54 patient organizations asking that provisions to improve medication access in emergencies is included in upcoming pandemic preparedness legislation.

NORD joins a letter with other patient organizations to Chairwoman Murray and Chairman Pallone regarding their request for information to design a public health insurance option

NORD joins a letter with several other patient organizations asking House and Senate leadership to prioritize making the advance premium tax credits permanent in the reconciliation package

NORD joins a letter to Congressional leadership to support a national paid family and medical leave program

NORD joins a comment letter to the WA State Office of the Insurance Commissioner on the draft for health care sharing ministries

NORD and 30 other patient organizations submit a letter of support to the California Assembly in support of Senate Bill 247 to establish an RDAC

NORD Sends Letter to Governor Scott: Vermont Rare Disease Advisory Council Signature (H.46)

NORD Letter to Northeast Public Health Collaborative on State RDAC Resources

NORD Signs-On to Letter Asking Congress to Support the NIH

NORD Signs-on to Ad-Hoc Letter to Support NIH Funding for Fiscal Year 2026

NORD joins letter urging CMS to implement appropriate guardrails on utilization management in Part D

NORD joins leading patient groups in letter to Congress urging protection for Medicaid during budget reconciliation process

NORD Joins Over 100 Patient Organizations in Letter Urging Congress to Fully Fund Congressionally Directed Medical Research Programs

NORD signs-on to letter supporting the Clinical Trial Modernization Act (H.R. 8412)

NORD Sends Letter to New York State Department of Health Commissioner Asking for a Permanent NY RDAC in FY26

NORD signs on letter supporting the passage of the PASTEUR Act

NORD Signs on to Letter of Support for the Innovation in Pediatric Drugs Act of 2024 (S. 4905)

NORD Responds to Letter of False Accusations Sent to Our Patient Advocacy Members

NORD Issues Letter of Support for A10292 (Paulin) – Creating a Permanent RDAC in New York State

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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