Search Results for: reports_by_letter.html

Policy Statement

Coalition letter to the White House urging action on surprise medical billing

Policy Statement

Coalition letter to Congress urging action on surprise medical billing

Policy Statement

NORD letter to Congress in support of an expedient solution to surprise medical billing

Policy Statement

NORD sign-on letter from over 30 rare disease organizations in support of Dr. Stephen Hahn, the nominee for FDA Commissioner

Policy Statement

NORD letter to Massachusetts in support of H.1853/S.1235, legislation to reform step therapy practices

Policy Statement

NORD letter to Massachusetts in support of H. 1934, legislation to create a rare disease advisory council

Policy Statement

Coalition letter to Congress urging action to stop surprise medical billing

Policy Statement

NORD sign-on letter from over 40 rare disease patient organizations asking Congress to protect immigrants with rare diseases after having participated in clinical trials

Policy Statement

NORD letter to Idaho in opposition to its Section 1115 waiver

Policy Statement

NORD letter to Massachusetts regarding copay assistance

Policy Statement

NORD letter urging United States Citizenship and Immigration Services (USCIS) to reverse a recent decision on deferred action that is having a negative impact on immigrants with rare diseases

Policy Statement

NORD letter to Pennsylvania in support of Senate Bill 731, an act pertaining to copay assistance

Policy Statement

Coalition letter to HHS in opposition to changes to Section 1557 of the ACA

Policy Statement

Coalition letter to the Senate in support of S.J.Res.52, legislation to reverse CMS’ most recent Section 1332 guidance

Policy Statement

MAPRx letter to the Senate Committee on Finance regarding its drug pricing legislative package

Policy Statement

NORD letter to New York Governor Cuomo in support of A 5762/S 4497, legislation to create a rare disease advisory council

Policy Statement

NORD letter to the Senate Committee on Finance regarding its drug pricing legislative package

Policy Statement

NORD letter to Council of State Government regarding legislation to preserve copay assistance

Policy Statement

Coalition letter to Congress in support of a provision to increase the uptake of biosimilars

Policy Statement

Coalition letter to state insurance commissioners regarding copay accumulator adjustment programs

Policy Statement

NORD letter to the Senate Committee on Health, Education, Labor and Pensions (HELP) on the Lower Health Care Costs Act of 2019 (S. 1895)

Policy Statement

Coalition letter to Congress in support of the Newborn Screening Saves Lives Reauthorization Act (H.R.2507)

Policy Statement

NORD letter to the House Committee on Energy and Commerce in support of the Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507)

Policy Statement

Coalition letter to Congress in support of the Vaccine Awareness Campaign to Champion Immunization Nationally and Enhance Safety (VACCINES) Act of 2019 (H.R.2862)

Policy Statement

Coalition letter to Congress in support of the Medical Expense Savings Act (S.110, H.R.2073)

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Search Results for: reports_by_letter.html

Coalition letter to the White House urging action on surprise medical billing

Coalition letter to Congress urging action on surprise medical billing

NORD letter to Congress in support of an expedient solution to surprise medical billing

NORD sign-on letter from over 30 rare disease organizations in support of Dr. Stephen Hahn, the nominee for FDA Commissioner

NORD letter to Massachusetts in support of H.1853/S.1235, legislation to reform step therapy practices

NORD letter to Massachusetts in support of H. 1934, legislation to create a rare disease advisory council

Coalition letter to Congress urging action to stop surprise medical billing

NORD sign-on letter from over 40 rare disease patient organizations asking Congress to protect immigrants with rare diseases after having participated in clinical trials

NORD letter to Idaho in opposition to its Section 1115 waiver

NORD letter to Massachusetts regarding copay assistance

NORD letter urging United States Citizenship and Immigration Services (USCIS) to reverse a recent decision on deferred action that is having a negative impact on immigrants with rare diseases

NORD letter to Pennsylvania in support of Senate Bill 731, an act pertaining to copay assistance

Coalition letter to HHS in opposition to changes to Section 1557 of the ACA

Coalition letter to the Senate in support of S.J.Res.52, legislation to reverse CMS’ most recent Section 1332 guidance

MAPRx letter to the Senate Committee on Finance regarding its drug pricing legislative package

NORD letter to New York Governor Cuomo in support of A 5762/S 4497, legislation to create a rare disease advisory council

NORD letter to the Senate Committee on Finance regarding its drug pricing legislative package

NORD letter to Council of State Government regarding legislation to preserve copay assistance

Coalition letter to Congress in support of a provision to increase the uptake of biosimilars

Coalition letter to state insurance commissioners regarding copay accumulator adjustment programs

NORD letter to the Senate Committee on Health, Education, Labor and Pensions (HELP) on the Lower Health Care Costs Act of 2019 (S. 1895)

Coalition letter to Congress in support of the Newborn Screening Saves Lives Reauthorization Act (H.R.2507)

NORD letter to the House Committee on Energy and Commerce in support of the Newborn Screening Saves Lives Reauthorization Act of 2019 (H.R. 2507)

Coalition letter to Congress in support of the Vaccine Awareness Campaign to Champion Immunization Nationally and Enhance Safety (VACCINES) Act of 2019 (H.R.2862)

Coalition letter to Congress in support of the Medical Expense Savings Act (S.110, H.R.2073)

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