Search Results for: reports_by_letter.html

Policy Statement

Coalition letter requesting Virginia Governor Ralph Northam to veto legislation that could threaten coverage for those with pre-existing conditions

Policy Statement

NORD’s Rare Cancer Coalition Sends Letter on Biomarker Testing Rollback: New York State Budget

Policy Statement

NORD Joins Leading Patient Organizations in Letter to HHS Secretary Urging CMS to Reject Arkansas ARHOME 1115 Demonstration Amendment

Policy Statement

NORD Signs-on to ARPA-H Appropriations Letter

Policy Statement

NORD Rare Disease Centers of Excellence Letter to HHS on Termination of ACHDNC

Policy Statement

NORD Signs Letter in Support of Federally Funded Research

Policy Statement

NORD Send Letter to Excellus BCBS Expressing Concern on Accelerated Approval Policy

Policy Statement

NORD Joins Leading Patient Groups in Letter Detailing Priorities for 119th Congress

Policy Statement

NORD Sends Letter on Biomarker Testing Rollback: New York State Budget

Policy Statement

NORD Submits Letter in Support of Washington SB5064 to Create a Rare Disease Advisory Council

Policy Statement

NORD, as a member of the NCATS Alliance, sends letter requesting NCATS be elevated to an Institution at NIH

Policy Statement

NORD joins letter to Congressional leadership outlining coverage priorities

Policy Statement

NORD Signs on to Letter Supporting End of Year Package to Support Rare Diseases

Policy Statement

NORD Leads Nearly 200 Patient Advocacy Organizations In a Letter of Support to Reauthorize Rare Disease Pediatric Review Voucher (PRV) Program

Policy Statement

Coalition letter to the Senate in support of the MODERN Labeling Act (S.3519)

Policy Statement

Coalition letter to the Council of the District of Columbia in support of a bill that would place restrictions on short-term, limited-duration plans and association health plans

Policy Statement

Coalition letter urging Massachusetts to extend the authorization for copay cards

Policy Statement

NORD letter in support of adding MPS I and Pompe to Indiana’s newborn screening panel

Policy Statement

Coalition letter thanking Governor Wolf of Pennsylvania for vetoing HB2138

Policy Statement

Coalition letter thanking Congress for increasing funding for research

Policy Statement

Coalition letter asking Congress to reauthorize loan repayment for pediatric subspecialists

Policy Statement

Coalition letter thanking Congress for funding the National Neurological Conditions Surveillance System

Policy Statement

Coalition letter to Secretary Azar regarding the patient protections in H.R.2077 that ought to be incorporated when implementing step therapy in Medicare Advantage plans

Policy Statement

Coalition letter asking Secretary Azar and Administrator Verma to approve Maine’s State Plan Amendment (SPA) to expand Medicaid

Policy Statement

Coalition letter to Secretary Azar regarding the recent decision to allow step therapy in Medicare Advantage plans

< Prev
1
…
8
9
10
…
22
Next >

Update Search

Filter Results

Update Search

Filter Results

Search Results for: reports_by_letter.html

Coalition letter requesting Virginia Governor Ralph Northam to veto legislation that could threaten coverage for those with pre-existing conditions

NORD’s Rare Cancer Coalition Sends Letter on Biomarker Testing Rollback: New York State Budget

NORD Joins Leading Patient Organizations in Letter to HHS Secretary Urging CMS to Reject Arkansas ARHOME 1115 Demonstration Amendment

NORD Signs-on to ARPA-H Appropriations Letter

NORD Rare Disease Centers of Excellence Letter to HHS on Termination of ACHDNC

NORD Signs Letter in Support of Federally Funded Research

NORD Send Letter to Excellus BCBS Expressing Concern on Accelerated Approval Policy

NORD Joins Leading Patient Groups in Letter Detailing Priorities for 119th Congress

NORD Sends Letter on Biomarker Testing Rollback: New York State Budget

NORD Submits Letter in Support of Washington SB5064 to Create a Rare Disease Advisory Council

NORD, as a member of the NCATS Alliance, sends letter requesting NCATS be elevated to an Institution at NIH

NORD joins letter to Congressional leadership outlining coverage priorities

NORD Signs on to Letter Supporting End of Year Package to Support Rare Diseases

NORD Leads Nearly 200 Patient Advocacy Organizations In a Letter of Support to Reauthorize Rare Disease Pediatric Review Voucher (PRV) Program

Coalition letter to the Senate in support of the MODERN Labeling Act (S.3519)

Coalition letter to the Council of the District of Columbia in support of a bill that would place restrictions on short-term, limited-duration plans and association health plans

Coalition letter urging Massachusetts to extend the authorization for copay cards

NORD letter in support of adding MPS I and Pompe to Indiana’s newborn screening panel

Coalition letter thanking Governor Wolf of Pennsylvania for vetoing HB2138

Coalition letter thanking Congress for increasing funding for research

Coalition letter asking Congress to reauthorize loan repayment for pediatric subspecialists

Coalition letter thanking Congress for funding the National Neurological Conditions Surveillance System

Coalition letter to Secretary Azar regarding the patient protections in H.R.2077 that ought to be incorporated when implementing step therapy in Medicare Advantage plans

Coalition letter asking Secretary Azar and Administrator Verma to approve Maine’s State Plan Amendment (SPA) to expand Medicaid

Coalition letter to Secretary Azar regarding the recent decision to allow step therapy in Medicare Advantage plans

Make 2026 Count: Gift research, care, and advocacy for families everywhere

Update Search

Filter Results

Update Search

Filter Results

Search Results for: reports_by_letter.html

Access State Report Card Data