Search Results for: www.cancersupportcommunity.org

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Saving Eliza

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The Fight for a Cure for Duchenne

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NORD and University of Maryland Partner on PCORI Award to Advance Rare Disease Research

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NORD and Trio Health to Provide Real-World Insights to Improve Access and Quality of Care for More Than 7,000 Rare Diseases

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NORD Issues Statement in Response to PDUFA VI Commitment Letter

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Nominations Open for NORD’s 2017 Rare Impact Awards

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State Report Card to Help People with Rare Diseases

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Information on current NATPARA® shortage

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Dr. Edward Neilan: NORD’s Chief Medical and Scientific Officer

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Delaware Enacts Law to Address Needs of Rare Disease Patients and Families

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The TBCK Foundation “Black Ties for Rare”

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Research Grants for Rare Disease Research Available from National Organization for Rare Disorders (NORD)

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CMTC-OVM

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Unverricht-Lundborg syndrome

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Member Spotlight: CdLS Foundation

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Member Spotlight: CLOVES Syndrome Community

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Member Spotlight: FIRST

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Senate Passes Landmark 21st Century Cures Act

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NORD 35th Anniversary Blog Series: The Early Years (1980s)

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Cutis Laxa Internationale

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Largest-Ever Study of SYNGAP1 (MRD5), Linked to Autism, was Launched

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NORD Issues Statement on Confirmation of New FDA Commissioner, Dr. Scott Gottlieb

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The Cute Syndrome Foundation and NORD Launch The Cute Syndrome Foundation Global SCN8A Survey Series

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NORD Issues Statement on NIH Appointment of New Director for Office of Rare Diseases Research

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Narcolepsy Network