Search Results for: www.sandhoffdisease.webs.com

Policy Statement

Coalition comments to Delaware’s Department of Insurance in support of a proposed rule that would place restrictions on short-term, limited-duration health plans.

Policy Statement

Comment letter on the telehealth provisions of the FY 2021 Medicare Physician Fee Schedule

Policy Statement

Coalition comments to the Department of Health and Human Services and Department of the Treasury regarding Georgia’s 1332 waiver application.

Policy Statement

Coalition comments opposing Florida’s request to extend its current Medical Managed Assistance 1115 demonstration.

Policy Statement

NORD and 17 other patient organizations submit a letter to the MS House Public Health and Human Services Committee urging them to support the creation of a Rare Disease Advisory Council

Policy Statement

NORD joins hundreds of organizations in establishing a pathway for comprehensive telehealth reform

Policy Statement

NORD and 20 patient organizations submit comments on rulemaking to implement the No Surprises Act

Policy Statement

NORD letter to the Louisiana Senate Insurance Committee in support of House Bill 263 to update the state’s step therapy law

Policy Statement

NORD testimony to the Ohio House Health Committee in support of House Bill 469 to ensure all prescription copayments count towards patient cost-sharing obligations

Policy Statement

NORD letter to the Michigan House Ways and Means Committee in support of House Bill 5944, a bill regarding prescription drug copay assistance.

Policy Statement

Coalition letter to the Louisiana House Committee on Insurance in support of House Bill 263, to reform step therapy protections for patients

Policy Statement

NORD comments on Oklahoma’s Section 1115 waiver

Policy Statement

NORD and 12 other patient organizations submit a letter to the MI Senate Health Policy and Human Services Committee urging them to support the creation of a Rare Disease Advisory Council

Policy Statement

NORD comments to FDA regarding its Humanitarian Device Exemption (HDE) program

Policy Statement

Coalition comments to CMS regarding New Jersey’s Section 1332 waiver

Policy Statement

NORD joins leading patient organizations in submitting comments to CMS on Medicaid Unwinding IFR

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Guest Blog: One Mother’s Mission Turns Into a Global Movement for a Cure for MSD

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Stripe Out in Your Community

Policy Statement

NORD letter to the Chairman of the New Jersey General Assembly Health Committee in support of Assembly bill 4815, a bill regarding step therapy protocols.

Policy Statement

NORD and 13 patient organizations submit comments to the federal government in support of Colorado’s 1332 waiver application

Policy Statement

Coalition comments on HHS proposed guidance practices

Policy Statement

NORD and coalition partners submit comments on Colorado’s 1332 state innovation waiver application to implement the Colorado Option program

Policy Statement

NORD submits written testimony to the Washington Senate Health and Long-Term Care Committee in support of Senate Bill 5886 to establish an RDAC

Policy Statement

NORD and seventeen organizations submit comments on the Proposed Repeal of HHS Rules on Guidance, Enforcement, and Adjudication Procedures

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Search Results for: www.sandhoffdisease.webs.com

Coalition comments to Delaware’s Department of Insurance in support of a proposed rule that would place restrictions on short-term, limited-duration health plans.

Comment letter on the telehealth provisions of the FY 2021 Medicare Physician Fee Schedule

Coalition comments to the Department of Health and Human Services and Department of the Treasury regarding Georgia’s 1332 waiver application.

Coalition comments opposing Florida’s request to extend its current Medical Managed Assistance 1115 demonstration.

NORD and 17 other patient organizations submit a letter to the MS House Public Health and Human Services Committee urging them to support the creation of a Rare Disease Advisory Council

NORD joins hundreds of organizations in establishing a pathway for comprehensive telehealth reform

NORD and 20 patient organizations submit comments on rulemaking to implement the No Surprises Act

NORD letter to the Louisiana Senate Insurance Committee in support of House Bill 263 to update the state’s step therapy law

NORD testimony to the Ohio House Health Committee in support of House Bill 469 to ensure all prescription copayments count towards patient cost-sharing obligations

NORD letter to the Michigan House Ways and Means Committee in support of House Bill 5944, a bill regarding prescription drug copay assistance.

Coalition letter to the Louisiana House Committee on Insurance in support of House Bill 263, to reform step therapy protections for patients

NORD comments on Oklahoma’s Section 1115 waiver

NORD and 12 other patient organizations submit a letter to the MI Senate Health Policy and Human Services Committee urging them to support the creation of a Rare Disease Advisory Council

NORD comments to FDA regarding its Humanitarian Device Exemption (HDE) program

Coalition comments to CMS regarding New Jersey’s Section 1332 waiver

NORD joins leading patient organizations in submitting comments to CMS on Medicaid Unwinding IFR

Guest Blog: One Mother’s Mission Turns Into a Global Movement for a Cure for MSD

Stripe Out in Your Community

NORD letter to the Chairman of the New Jersey General Assembly Health Committee in support of Assembly bill 4815, a bill regarding step therapy protocols.

NORD and 13 patient organizations submit comments to the federal government in support of Colorado’s 1332 waiver application

Coalition comments on HHS proposed guidance practices

NORD and coalition partners submit comments on Colorado’s 1332 state innovation waiver application to implement the Colorado Option program

NORD submits written testimony to the Washington Senate Health and Long-Term Care Committee in support of Senate Bill 5886 to establish an RDAC

NORD and seventeen organizations submit comments on the Proposed Repeal of HHS Rules on Guidance, Enforcement, and Adjudication Procedures

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