Policy Statement NORD joins numerous organizations in urging Congress to the enact the 2024 Defense Appropriations Act and to ensure full funding levels for the Defense Health Research Programs, including the Congressionally Directed Medical Research Programs (CDMRP)
News Statement by 91 Patient Organizations in Opposition to the House of Representatives’ Repeal of the Orphan Drug Tax Credit
News NIH Director Dr. Jay Bhattacharya to Headline Second Annual NORD Rare Disease Scientific Symposium Focused on Accelerating Innovation
Policy Statement NORD joins Research!America and other health care organizations in urging Congress to sustain federal funding for medical and public health research in the FY23 omnibus appropriations bill
News Tatton Brown Rahman Syndrome Community and NORD® Launch Natural History Study of Tatton Brown Rahman Syndrome (TBRS)
News NORD Awards $65,000 in Grant Funding for Research into Two Rare Diseases, AVM and MMIHS, at NORD Rare Disease Centers of Excellence
News NORD Announces 20 Rare Disease Patient Groups Selected to Develop Natural History Studies as Part of FDA Cooperative Agreement
News 2020 NORD Summit to Feature Leading Experts in Public Policy, Patient Advocacy, Rare Disease Research and Regulatory Science
News Newborn Screening: The HCP Perspective on the Importance of Confirmatory Testing and Collaboration
News NORD Breakthrough Summit Features Bold New Ideas for the Future of Rare Disease Care, Policy and Research
News FDA CBER Director Dr. Vinay Prasad to Keynote NORD’s Inaugural Rare Disease Scientific Symposium, Convening Top Researchers, Industry Leaders, and Federal Regulators
