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News

Together, we can be stronger for those that need us.

News

Nominations for the Rare Impact Awards Close Friday, January 12

News

NORD Rare Action Network® 2018 State Report Card

News

NORD Reaction to Recently-Enacted Government Spending Bill

News

Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree

News

Writing the Book on Your Child’s Rare Disease: Raymond’s Story in Honor of Rare Disease Day

News

Moving documentary on Joshua Frase Foundation, Nibs – the matriarch of the first ever MTM dog colony, and the power of patient advocacy

Event

Rare Cancer Coalition at AACR!

News

NORD Invites Video Submissions on Advocacy Experience

News

Three Big Reasons Not to Miss the 2018 NORD Rare Summit

News

Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

News

New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs

Policy Statement

NORD’s Statement in Support for Reauthorization of Rare Pediatric Disease Priority Review Voucher Program

News

New Community Survey Findings from NORD Reveal Significant Impact of COVID-19 on Americans Living with Rare Diseases

Resource

Herramientas de RareLaunch (Taller de Diciembre 2020)

News

Voices of Rare Cancer: Jan’s Story

News

NORD and FDA Co-Host Public Listening Session, Focusing on COVID-19 and Rare Diseases

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