News America’s Rare Children Need Congress to Act: NORD Urges Swift Reauthorization of Proven Rare Pediatric Disease Voucher Program
Policy Statement National Organization for Rare Disorders Urges Congress To Protect Funding for Rare Disease Research, Commends Exclusion of Work Requirements for Medicaid in Debt Ceiling Deal
Policy Statement NORD joins Friends of Cancer Research and 50 other organizations in letter to the Senate supporting the nomination of Dr. Robert Califf to be Commissioner of the FDA
News NORD and Friends of Cancer Research Issue Joint Statement In Advance of this Week’s Congressional Hearings on FDA User Fees
News International Pemphigus & Pemphigoid Foundation Launches Largest-Ever Study of Pemphigus and Pemphigoid
News The Cute Syndrome Foundation and NORD Launch The Cute Syndrome Foundation Global SCN8A Survey Series
Policy Statement NORD joins 122 other organizations in advocating for increased funding for Congressionally Directed Medical Research Programs (CDMRP)
News Five Years of Patient Registry Success: NORD’s IAMRARE™ Registry Program Celebrates New Partnerships and Models of Engagement
Policy Statement Coalition letter to Congress regarding medical research within the fiscal year 2019 National Defense Authorization Act
Policy Statement Coalition letter asking Congress to reauthorize the Patient-Centered Outcomes Research Institute
