- Donate
- Understanding Rare Disease
- Living with a Rare Disease
- Community Support
- Advancing Research
- Driving Policy
- Get Involved
- Rare Disease News
- Resource Library
- About Us
- For Clinicians & Researchers
- For Patient Organizations
https://rarediseases.org/driving-policy/nord-state-report-card//
https://rareaction.org
https://rareaction.org/resources-for-advocates/state-profiles/idaho
In the latest edition of the NORD State Report Card we analyze all 50 states and Washington, D.C., on nine policy issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background on the report and to view additional resources, please visit the State Report Card landing page.
More - https://rarediseases.org/policy-issues/medicaid-financial-eligibility/
Medicaid Eligibility for Childless Adults: A
Medicaid Eligibility for Parents of a Dependent Child: A
Medicaid Eligibility for Pregnant Women: D
Medicaid Eligibility for Children: D
More - https://rarediseases.org/policy-issues/medical-nutrition/
More - https://rarediseases.org/policy-issues/newborn-screening/
Screening for RUSP Core Conditions Grade: B
Adding Screens Grade: C
AC Grade: A
More - https://rarediseases.org/policy-issues/prescription-drug-out-of-pocket-costs/
More - https://rarediseases.org/policy-issues/protecting-patients-in-state-medicaid-programs/
More - https://rarediseases.org/policy-issues/protecting-patients-in-state-regulated-insurance/
Initial Plan Duration Grade: F
Renewals Grade: F
Maximum Duration Grade: F
More - https://rarediseases.org/policy-issues/rare-disease-advisory-councils/
Has a Rare Disease Advisory Council?: No
More - https://rarediseases.org/policy-issues/step-therapy-fail-first/
Categories: F
Exceptions Process: F
Clinical Practice: F
Timeline: F
More - https://rarediseases.org/policy-issues/telehealth/
Member of Interstate Medical Licensure Compact (IMLC)?: Pass
One in 10 Americans lives with rare disease, many of whom fight a daily battle to access the care and support they need. Your gift to the National Organization for Rare Disorders (NORD®) funds life-changing programs and helps us advance policies and research to ensure that everyone gets the care they need AND deserve.