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Requests for Proposals

The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding. Grants provided through the NORD program are made possible by donations from individuals and organizations to restricted research funds at NORD.

NORD’s 2016 Request for Proposals round will be announced in May. If you would like to be included on email distributions outlining the grant opportunities please email




NORD’s member organizations are invited to share information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP. In order to have information posted on this page, please email

Children’s Cardiomyopathy Foundation
Request for Research Applications on Pediatric Cardiomyopathy
The Children’s Cardiomyopathy Foundation (CCF) invites investigators to submit research proposals for basic, clinical, population/epidemiologic or translational studies focused on primary cardiomyopathy in children under the age of 18 years. CCF’s grant program is designed to provide seed funding to investigators for testing their scientific hypotheses and for collecting preliminary data to secure long-term funding from the National Institutes of Health and/or other major granting institutions.
More information here.

2016 Competitive Research Grant Call for Proposals
The IFOPA offers the FOP Competitive Grant Research Program to help accelerate development of a safe and transformative therapy for the disease. The program provides, through a competitive application process, research funding to scientists conducting research on fibrodysplasia ossificans progressiva (FOP). Research grants should be focused on discovery and advancement of new therapeutic approaches to FOP with a disposition toward approaches likely to have near-term clinical or translational relevance. FOP researchers with a doctoral degree (MD, PhD or equivalent) at any stage of their career in any country are eligible to apply. A total of $100,000 is available in 2016, allowing for either multiple grants of lessor amounts or a single grant for the full amount. Applications are reviewed by a Scientific Advisory Board that is free of conflict of interest and has relevant and appropriate expertise related to FOP to evaluate proposals.
Proposals are due Friday, July 1, 2016. Winners will be announced in October and funding will begin in December.
For more information, please visit our website here or email

Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
Contact Name:
Jack Kelly- or Nupur Garg, PhD-
Disease Name: Generalized lymphatic anomaly (lymphangiomatosis) & Gorham-Stout Syndrome
Amount: There are no pre-determined figures governing these parameters.
Length of Study: The period of award and level of funding is unique to each funded project.
More information here.

TagetCancer Foundation
TargetCancer Foundation is announcing their first round of rare cancer research grant funding for 2016: $200,000 in new grants supporting innovative rare cancer research, as well as a new program supporting patients facing cholangiocarcinoma.
More information here.


Requests for Proposals

Medical Advisors

All medical decisions guiding the NORD Research Grant Program are made by NORD’s Scientific and Medical Advisory Committee. View the committee >