Volunteer with NORD®
NORD was founded by a grassroots coalition of volunteers, patients, and family caregivers; volunteers aren’t just a part of our organization, they are our DNA. We see volunteers as the heartbeat of our mission. We believe the next life-changing breakthrough or legislative victory will be driven by the exact same passion that led to the establishment of our organization over 40 years ago.
As a volunteer, you’ll join a community of people across the country improving the health and well-being of people living with rare diseases. Opportunities vary by time commitment, location, and your passions and preferences.
Join our monthly virtual volunteer information session to learn about current volunteer opportunities. Whether you are looking to advocate for policy changes, raise awareness in your community, or help out at our annual events, this session will help you figure out how you can make an impact as a NORD volunteer.


