The DAND Alliance

The DAND Alliance is committed to advancing awareness, understanding, and treatment of DEAF1-Associated Neurodevelopmental Disorders (DAND): the Vulto-van Silfhout-de Vries Syndrome (VSVS) and NEDHELS Syndrome. Through community engagement, scientific research, and collaborative partnerships, The DAND Alliance aims to improve the quality of life for affected individuals and their families.