SITUS Foundation Inc

The Foundation: Bringing Hope Through Science, Support, and Connection.
Situs Foundation is a nonprofit organization dedicated to supporting families affected by Situs Inversus — a rare congenital condition in which the internal organs are mirrored from their normal positions. Our mission is to advance medical research, raise awareness, and offer resources and compassionate outreach to families navigating this unique diagnosis. We believe every family deserves answers, support, and community.

Mission: SITUS foundation works to create avenues for collaboration, allowing healthcare professionals and the public to access up to date medical education resources, support groups, and funding opportunities to alleviate the burden of healthcare costs as well as to empower professionals to initiate clinical studies and develop evidence-based solutions.

Vision: A world where situs inversus patients and families feel supported, situs inversus is better understood by innovative research, and medical education is readily accessible to the public.
Core Values: advocacy, health literacy, innovation, and awareness

Why it was Founded-Bug’s Story: SITUS Foundation was formed and inspired by the extraordinary diagnosis of our son, whom we lovingly call “buggy” short for love bug. Our mission is to enhance available education resources, research innovation, awareness, advocacy, donations, support groups, outreach, create a sense of community, as well as assist with the mounting medical expenses those impacted by situs inversus and rare genetic conditions incur. With our Medical and Scientific Advisory Board and International Patient and Family Advisory Board-science and lived experience come together to shape our projects and resources in this rare disease space. Our awareness and community outreach programs help inform the public on this important condition and how they can get involved. With 1 in 10,000 people diagnosed worldwide with situs inversus it is estimated that approximately 825,000 people are impacted. This foundation is my love letter to all of the patients, parents, and families experiencing this condition-We see you, we support you, we are here for you. Thank you for being a part of this journey and helping us make a transformative difference.