Mar. 17, 2021
Posted by Valaree DonFrancesco
On the show today — we’ve got a big one or you — Yann Le Cam, Co-Founder and Chief Executive Officer of EURODIS and Rare Diseases International — and “enraged rare disease advocate”, as the media have hailed him. We only recently celebrated Rare Disease Day 2021 on February 28th so we thank all of you who participated and remind those who could not that anyone can be a rare disease advocate and activist 24/7/365 by visiting RareDiseaseDay.com. Jann and I talk about the history of rare disease advocacy, his personal experience raising a daughter with Cystic Fibrosis, the lessons he’s learned leading the space over the past 30 years, and what we can all look forward to over the next decade.
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