Raise Your Hand for Rare Disease Research
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Published February 3, 2017 by NORD
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Read morePublished December 22, 2016 by NORD
Today we are sharing the story of one little girl who, by the age of three-months old, had faced surgery, an investigational treatment, and a near-fatal infection. When Gabby was born …
Continue reading “Family Moves Across State Lines to Receive Better Access”
Read morePublished December 20, 2016 by NORD
“When you are faced with a difficult health challenge, you need to be able to turn to a trusted source for support and advice – much like many people battling …
Continue reading “A Message from Our President and CEO”
Read morePublished October 14, 2016 by NORD
Registration is open for the 2017 Rare Impact Awards.
Read morePublished October 5, 2016 by NORD
Washington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases …
Continue reading “Rare Diseases & Orphan Products Breakthrough Summit Speakers”
Read morePublished September 30, 2016 by NORD
NORD Now has A Growing Home Page on The Mighty and Will Appear on Many Stories on the Site.
Read morePublished June 17, 2016 by NORD
The strength of the rare disease community is defined by the people in it, and rare dads are some of our strongest advocates. You are always there to try and …
Continue reading “Happy Father’s Day from NORD”
Read morePublished June 15, 2016 by NORD
The National Organization for Rare Disorders (NORD), the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, has appointed Marshall L. Summar, M.D., as …
Read morePublished May 27, 2016 by NORD
Emergency room visits are a fact of life for many people with rare diseases. And, when the patient is a child, these experiences can be especially stressful for the entire …
Continue reading “NORD Members Share Great Resources for ER Visits During #RareERChat”
Read morePublished May 23, 2016 by NORD
NORD’s Rare Diseases and Orphan Products Breakthrough Summit will be held in Arlington, VA October 17-18
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