Published November 30, 2017 by NORD
Washington DC, Thursday, November 30 — The National Organization for Rare Disorders (NORD) has published new physician guides to promote diagnosis and treatment for patients with three rare medical conditions: hepatocellular …
Continue reading “NORD Publishes Information for Physicians and Patients on Three Rare Diseases”
Read morePublished November 20, 2017 by NORD
Washington, D.C., November 20, 2017 – “Last week, the House of Representatives voted to repeal the Orphan Drug Tax Credit (ODTC) as part of the Tax Reform and Jobs Act …
Read morePublished November 14, 2017 by NORD
Washington, D.C., November 14, 2017 – “Today, the Senate Finance Committee continues its consideration of the Tax Cuts and Jobs Act. Our organizations, which collectively represent millions of individuals with …
Read morePublished November 13, 2017 by NORD
Washington, D.C., November 13, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Li-Fraumeni …
Continue reading “NORD Publishes New Educational Resource on Li-Fraumeni Syndrome”
Read morePublished November 13, 2017 by NORD
Washington, D.C., November 8, 2017 — Peter Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare …
Read morePublished November 10, 2017 by NORD
Washington, D.C., November 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished November 2, 2017 by NORD
Washington, D.C., November 2, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished October 26, 2017 by NORD
View the full documentary. Danbury, C.T., October 26, 2017 – Imagine never being allowed to feel the sun on your skin. For 11-year-old Peyton, who is allergic to sunlight, that is …
Continue reading “NORD Releases New Documentary called “Good Morning Peyton””
Read morePublished September 26, 2017 by NORD
Washington, D.C., September 26, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the …
Read morePublished September 19, 2017 by NORD
The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal …
Continue reading “NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan”
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