Published June 27, 2017 by NORD
Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished June 22, 2017 by NORD
Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding …
Continue reading “NORD Issues Statement on the Better Care Reconciliation Act of 2017”
Read morePublished June 20, 2017 by NORD
Washington, D.C., June 20, 2017 – The National Organization for Rare Disorders (NORD), an independent nonprofit organization representing the 30 million Americans with rare diseases, has launched a nationwide campaign to …
Read morePublished May 31, 2017 by NORD
Washington, D.C., May 31, 2017—NORD released the following statement in advance of today’s “Orphan Drug Assessment and Pricing Summit” held by the Institute for Clinical and Economic Review (ICER): “We are …
Continue reading “NORD Releases Statement on Orphan Drug Assessment & Pricing Summit”
Read morePublished May 30, 2017 by NORD
Washington, D.C., May 30, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on …
Continue reading “NORD Publishes Report on Hereditary Sensory Autonomic Neuropathy Type 1E”
Read morePublished May 10, 2017 by NORD
Washington, D.C., May 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the …
Continue reading “NORD Issues Statement on Confirmation of New FDA Commissioner, Dr. Scott Gottlieb”
Read morePublished May 4, 2017 by NORD
Washington, D.C., May 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Continue reading “NORD Issues Statement on Today’s Passage of the American Health Care Act”
Read morePublished May 1, 2017 by NORD
Washington (May 1, 2017) – On behalf of more than one hundred million Americans battling chronic and other major health conditions, a coalition of 10 patient organizations remains united in …
Continue reading “Leading Patient Advocacy Groups Stand Together to Oppose American Health Care Act”
Read morePublished May 1, 2017 by NORD
CALL TO ACTION: Congress could vote this week – please take a minute to phone your legislators and ask them to vote no (click) Washington, D.C., May 1, 2017—The National …
Read morePublished March 15, 2017 by NORD
Rare Impact Award Cynthia Tifft, M.D., Ph.D. Dr. Cynthia Tifft is working to solve some of the nation’s toughest medical mysteries. As the Director of the Pediatric Undiagnosed Diseases Program at …
Continue reading “Cynthia Tifft, M.D., Ph.D – 2017 Rare Impact Award Honoree”
Read more
Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
Please complete this form to access the requested resource.