CCHS Family Network
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The CCHS Family Network is ending the isolation and angst of families dealing with a rare diagnosis where knowledge and treatment is extremely limited.
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Published December 15, 2015 by NORD
The CCHS Family Network is ending the isolation and angst of families dealing with a rare diagnosis where knowledge and treatment is extremely limited.
Read morePublished December 10, 2015 by NORD
Thanks to the support of our partners and donors, NORD has launched new initiatives that empower the rare disease community in every state and strengthen the patient voice in Washington D.C.
Read morePublished December 7, 2015 by NORD
Connecting patients with Pachyonychia Congenita, PC Project says that it is “all about love”.
Read morePublished December 4, 2015 by NORD
When you or a beloved family member is facing serious illness, the last thing you need to be concerned with is how you will pay for the medication.
Read morePublished December 2, 2015 by NORD
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …
Continue reading “Be a Hero: Help NORD Educate Current and Future Medical Professionals”
Read morePublished November 23, 2015 by NORD
The National Brain Tumor Society Tumor is a non-profit organization whose mission is to inspire hope and provide leadership within the brain tumor community.
Read morePublished November 16, 2015 by NORD
Dedicated to breaking the isolation of patients and families affected by cutis laxa, a rare genetic disorder of the connective tissue.
Read morePublished November 9, 2015 by NORD
Laurie and Chuck Eallonardo were thrilled at the birth of their twins, Jenna and Caden. Laurie felt happy and relieved that she had been able to carry them for 38 …
Continue reading “Giving Spotlight: Parents Thank NORD for Saving Daughter’s Life”
Read morePublished November 2, 2015 by NORD
This week, the Guthy-Jackson Charitable Foundation is in the member spotlight!
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