Rare disease community members gathering together.

National Brain Tumor Society

Categorized in -
The National Brain Tumor Society (NBTS) is a non-profit organization whose mission is to inspire hope and provide leadership within the brain tumor community. They seek to find a cure and improve the quality of life for those affected by brain tumors. NBTS funds strategic research, delivers support services, and promotes collaboration. NBTS was formed in 2008 by the merger of two leading organizations that had served the brain tumor community: the National Brain Tumor Foundation and the Brain Tumor Society. Both legacy organizations had been formed in the 1980s by parents and other concerned individuals who were committed to increasing both research funding and access to resources specific to brain tumors.
1.) What does it mean to you personally to be a patient organization serving the rare community?
It is an honor to serve the brain tumor patient and caregiver community. We are fortunate to be able to get to know and work with some of the leading researchers in the world in the brain tumor arena.
2.) What do you find your patient community values most from your organization?
We believe that the patient community think values the leadership and information that National Brain Tumor Society provides as well as an ambitious agenda to find a cure.
3.) What are some of the challenges your organization has faced?
One of the biggest challenges is that brain tumors may be among the most complex, and resistant to treatment diseases, thus finding new and more effective treatments that can dramatically extend survival is challenging, but we are rising to it.
4.) Whats been your most successful awareness campaign and/or fundraising event?
This year we raised over $1 million through an event called the Grey Soiree and it also raised awareness about the fight against brain tumors.


55 Chapel Street
Suite 200
Newton, MA 02458





800 Number

(800) 770-8287

Email Address


NORD is happy to be putting the spotlight on National Brain Tumor Society this week. You can look forward to social media posts on our Facebook and Twitter accounts about National Brain Tumor Society throughout the week! Member Organizations to NORD interested in Member Spotlight should contact their regional membership managers at NORD to learn more!