PMPRF President’s Statement on Stuart Scott’s Passing, and his Impact on the Appendix Cancer Community
A reflection on the passing of ESPN anchor Stuart Scot from the President of PMP Research Foundation
Read morePublished January 5, 2015 by NORD
A reflection on the passing of ESPN anchor Stuart Scot from the President of PMP Research Foundation
Read morePublished December 23, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life
Read morePublished December 23, 2014 by NORD
Alena Galan is a happy 16-year old girl full of life and wise beyond her years. She can light up a room with her quick-witted charm and energetic personality. She …
Continue reading “Life is a Special Occasion”
Read morePublished December 23, 2014 by NORD
Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer in her …
Continue reading “Multiple Endocrine Neoplasia Type 1: One Family’s Fight”
Read morePublished December 23, 2014 by NORD
On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …
Continue reading “Taking Action for ACD”
Read morePublished December 18, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about…
Read morePublished December 1, 2014 by NORD
Join us on May 2015 in Washington DC to celebrate the successes of the rare disease community.
Read morePublished November 25, 2014 by NORD
Join us on May 2015 in Washington DC to celebrate the successes of the rare disease community.
Read morePublished November 25, 2014 by NORD
NORD launches the nation’s only Rare advocacy network.
Read morePublished November 5, 2014 by NORD
Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer in her …
Continue reading “Multiple Endocrine Neoplasia Type 1: One Family’s Fight”
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