Rare Disease News

New NORD PSA

Published August 12, 2015 by NORD

Categorized in -

Featured News

Sean Hepburn Ferrer, son of Actress Audrey Heburn, calls for more awareness of rare diseases in new PSA with NORD

Rare Action™ Road Tour, Salt Lake City, UT

Published August 7, 2015 by NORD

Categorized in -

Greetings from Salt Lake City (Day 2), As promised, I’m happy to introduce you to NORD’s State Ambassador for Utah, Gina Szajnuk. Say hello, Gina: “I am the mother of three children …

Continue reading “Rare Action™ Road Tour, Salt Lake City, UT”

Rare Disease Report and NORD Announce Editorial Collaboration

Published August 6, 2015 by NORD

Categorized in -

Featured News

NORD announced today, an editorial collaboration between Rare Disease Report and NORD, an exciting opportunity for the rare disease community.

Rare Action™ Road Tour, Salt Lake City, UT

Published August 6, 2015 by NORD

Categorized in -

Greetings from Salt Lake City, This is part 1 of 2 of two posts on SLC. Tomorrow I will post on our State Ambassador, Gina Szajnuk. Today, I’m happy to share a …

Continue reading “Rare Action™ Road Tour, Salt Lake City, UT”

Rare Action™ Road Tour, Denver, CO

Published August 3, 2015 by NORD

Categorized in -

Greetings from Denver, As the road tour heads further west, the distances between stops grow longer and longer. More time in the car means less time to blog. But, 10 hours and 632 …

Continue reading “Rare Action™ Road Tour, Denver, CO”

Taking Rare Action™ on the Road

Published August 3, 2015 by NORD

Categorized in -

Follow the cross-country road tour that introduces the NORD State Ambassadors and promotes the Rare Action Network™.

Member Spotlight: CLOVES Syndrome Community

Published August 3, 2015 by NORD

Categorized in -

Featured News

Supporting, educating, empowering and improving the lives of those affected by CLOVES syndrome. .

Rare Action™ Road Tour, Oklahoma City, OK

Published July 30, 2015 by NORD

Categorized in -

Greetings from Oklahoma, The awesome folks in the NORD marketing department created the snazzy logo and imagery that you see above (and in all previous posts). Driving through Oklahoma today, …

Continue reading “Rare Action™ Road Tour, Oklahoma City, OK”

Miss Iron County Supports Rare Disease Advocacy and Awareness

Published July 29, 2015 by NORD

Categorized in -

Miss Iron County explains how she supports rare disease advocacy and awareness during a Miss Utah competition.

Rare Disease News

Access State Report Card Data