Rare Disease News

PMPRF President’s Statement on Stuart Scott’s Passing, and his Impact on the Appendix Cancer Community

Published January 5, 2015 by NORD

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Featured News

A reflection on the passing of ESPN anchor Stuart Scot from the President of PMP Research Foundation

The Will to Live and the Strength for a Cure

Published December 23, 2014 by NORD

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The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life

Life is a Special Occasion

Published December 23, 2014 by NORD

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Alena Galan is a happy 16-year old girl full of life and wise beyond her years. She can light up a room with her quick-witted charm and energetic personality. She …

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Multiple Endocrine Neoplasia Type 1: One Family’s Fight

Published December 23, 2014 by NORD

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Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer in her …

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Taking Action for ACD

Published December 23, 2014 by NORD

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On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …

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