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April 25, 2018

TOPIC: Events, Featured News, Get Involved, Medical, Patient Stories, Patients & Members

Robert Campbell, Jr., M.D.: 2018 Lifetime Achievement Award Honoree

Posted at April 4, 2018 01:24 pm by Christina Jensen

Dr. Robert M. Campbell, Jr. is Director of the Center for Thoracic Insufficiency Syndrome (CTIS) and an Attending Physician in the Division of Orthopaedic Surgery at Children’s Hospital of Philadelphia (CHOP). He is best… Read More

April 25, 2018

TOPIC: Featured News, Get Involved, Industry, Medical, Patient Stories

Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree

Posted at April 4, 2018 01:07 pm by Christina Jensen

Richard Pazdur, M.D. is the Director of the Food and Drug Administration’s Oncology Center of Excellence (OCE), which leverages the combined skills of the FDA’s regulatory scientists and reviewers with expertise in drugs, biologics and devices to expedite the development of novel cancer products. In his role as director of the OCE, Dr. Pazdur is responsible for leading the… Read More

March 27, 2018

TOPIC: Featured News, Medical, Patients & Members, Press Releases

Neurology Reviews® and NORD Publish the 2018 Rare Neurological Disease Special Report

Posted at March 3, 2018 11:11 am by Laura Mullen

 

Parsippany – March 26, 2018 – The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing the 30 million Americans with rare diseases.

 Neurology Reviews is pleased to provide the most current information and news about rare neurological diseases. The 4th annual edition of the Read More

February 28, 2018

TOPIC: Featured News, Medical, Patients & Members, Press Releases

NORD to Collaborate with FDA on Pilot Patient Engagement Activity

Posted at February 2, 2018 09:09 am by Christina Jensen

Listening Sessions to Enable Sharing Rare Disease Experiences with FDA Review Divisions

Washington, D.C., February 28, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced a collaboration with the Food and Drug Administration (FDA) on a pilot project that would help FDA medical reviewers better… Read More

February 8, 2018

TOPIC: Featured News, Medical, Research

Current Funding Opportunity: NORD Research Grants for Rare Diseases

Posted at February 2, 2018 10:44 am by Christina Jensen

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced the availability of three research grants as part of its Rare Disease Research Grant Program. NORD encourages all U.S. and international researchers interested in studying one or more of these diseases to review… Read More