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April 17, 2019

TOPIC: Featured News, Medical, Press Releases, Research

The 2019 Rare Neurological Disease Special Report Is Now Available

Posted at April 4, 2019 09:10 am by Christina Jensen

This 5th annual issue is the largest to date and focuses on the progress
in medical science, genetics, and neuromuscular diseases

Parsippany, NJ – April 16, 2019 – Frontline Medical Communications (FMC) is pleased to announce the publication of the 2019 Neurology Reviews Rare Neurological Disease Special Report. Produced in collaboration with the National Organization for Rare Disorders… Read More

April 16, 2019

TOPIC: Featured News, Medical, Patients & Members

NORD Publishes Report on Primary Distal Renal Tubular Acidosis

Posted at April 4, 2019 09:12 am by Christina Jensen

NORD has published a report in its Rare Disease Database on primary distal renal tubular acidosis (dRTA), a rare genetic disorder that affects the ability of the kidneys to remove acid from the blood. It is caused by a mutation in one of at least three different genes resulting in a faulty,… Read More

November 29, 2018

TOPIC: Medical, Press Releases, Uncategorized

NORD Publishes Report on Post-Transplant Lymphoproliferative Disease

Posted at November 11, 2018 09:16 am by Laura Mullen

Washington, DC, November 29, 2018–As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Post-Transplant Lymphoproliferative Disease (PTLD) in its Rare Disease Database. This new resource is available free online… Read More

November 9, 2018

TOPIC: Advocacy, Get Involved, Medical

Featured Student: Jennifer Shoskes

Posted at November 11, 2018 12:50 pm by Christina Jensen

NORD’s Educational Initiatives team spoke with Jennifer Shoskes, a Northeastern University graduate student and NORD Student Chapter Leader. In this interview, Jennifer talks about her inspiration for starting a NORD Student Chapter and where she hopes to see her career go working within the rare disease community.
For more information on NORD’s student programs, click… Read More

October 8, 2018

TOPIC: Medical, Patients & Members

NORD Seeks Proposals for CME Partnership

Posted at October 10, 2018 10:09 am by Christina Jensen

The National Organization for Rare Disorders is seeking a partner to collaborate on the development of educational resources for medical professionals. NORD has published a Request for Proposals inviting accredited CME providers to respond with proposals by November 16.


Celebrating its 35th anniversary… Read More