Published May 1, 2025 by NORD
Congress is currently considering potentially sweeping funding cuts to Medicaid, a program that provides life-saving health care coverage and services to those who need it most. What is at stake …
Continue reading “Rare Faces of Medicaid: What’s at Stake for the Rare Community?”
Read morePublished April 4, 2025 by NORD
Fostering collaboration to drive progress in rare disease research By Tracey Sikora, Vice President of Research & Clinical Programs Rare disease research is full of obstacles — small patient populations, …
Continue reading “A Deeper Look at the New NORD Rare Disease Scientific Symposium”
Read morePublished March 21, 2025 by NORD
Danbury, CT, March 21, 2025 – The National Organization for Rare Disorders (NORD®) launched NORD® Claim Your Care to help those living with rare diseases navigate a complicated health insurance …
Continue reading “National Organization for Rare Disorders (NORD) Launches NORD Claim Your Care”
Read morePublished September 16, 2024 by NORD
The National Organization for Rare Disorders (NORD) has important information to share with you ahead of Medicare Open Enrollment as two new benefits of the Inflation Reduction Act, or IRA, …
Read morePublished September 21, 2023 by NORD
NORD partners with Medlive by Platform Q Health to provide accredited online CME courses for healthcare providers. This online platform allows us to reach a large number of learners with …
Continue reading “Rare Cancer Continuing Medical Education”
Read morePublished August 18, 2022 by NORD
August is national “Make a Will Month,” a critical moment for planned giving and making a lasting impact. Every adult – regardless of age – should take the time to …
Continue reading “Solidify Your Legacy for Make a Will Month”
Read morePublished July 12, 2022 by NORD
Many people with rare diseases require medical nutrition prescribed by a healthcare provider to prevent permanent disability and mortality, allow for normal growth in children and adults, or provide adequate …
Read morePublished December 20, 2021 by NORD
In November, NORD announced the launch of its Rare Disease Centers of Excellence program, which aims to improve medical care for people living with rare diseases. The program has ambitious …
Read morePublished September 28, 2021 by NORD
David Arons is the Chief Executive Officer of the National Brain Tumor Society (NBTS). He shares a passion for incorporating diversity, equity, and inclusion within the rare cancer and rare …
Continue reading “Head of the Herd: David Arons, National Brain Tumor Society”
Read morePublished September 3, 2021 by NORD
I have been a healthy person my whole life. I never drank alcohol or smoked, and I had a good diet. In 2004, I began to have some questionable numbers on blood work, but my primary doctor could never really tell what was going on. My …
Continue reading “Martin’s Fight Against Waldenstrom Macroglobulnemia”
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