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February 8, 2018

TOPIC: Featured News, Medical, Research

Current Funding Opportunity: NORD Research Grants for Rare Diseases

Posted at February 2, 2018 10:44 am by Lisa Sencen

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced the availability of three research grants as part of its Rare Disease Research Grant Program. NORD encourages all U.S. and international researchers interested in studying one or more of these diseases to review… Read More

January 18, 2018

TOPIC: Events, Get Involved, Medical

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Posted at January 1, 2018 11:26 am by Lisa Sencen

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader, Harjot Randhawa, was in attendance and wrote the excellent article below… Read More

December 20, 2017

TOPIC: Featured News, Medical, Research

NORD Awards Five New Grants for Rare Disease Research

Posted at December 12, 2017 10:26 am by Lisa Sencen

Washington, D.C., December 20, 2017 – The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced five grantees of its 2017 Rare Disease Research Grant Program.

NORD’s Rare Disease Research Grant Program provides seed funding to academic scientists for translational or clinical studies related to the… Read More

November 30, 2017

TOPIC: Featured News, Medical

NORD Publishes Information for Physicians and Patients on Three Rare Diseases

Posted at November 11, 2017 09:56 am by Lisa Sencen

Washington DC, Thursday, November 30 — The National Organization for Rare Disorders (NORD) has published new physician guides to promote diagnosis and treatment for patients with three rare medical conditions: hepatocellular carcinoma (HCC), acute myeloid leukemia (AML) and pigmented villonodular synovitis (PVNS).

NORD has also published corresponding reports on the three conditions for patients and their… Read More

November 13, 2017

TOPIC: Featured News, Medical, Research

NORD Publishes New Educational Resource on Li-Fraumeni Syndrome

Posted at November 11, 2017 12:21 pm by Lisa Sencen

Washington, D.C., November 13, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Li-Fraumeni Syndrome. This new resource is available free online to individuals around the world.

As the primary advocacy organization in the U.S. for people who have rare diseases, NORD provides… Read More