Published July 11, 2018 by NORD
Dr. Scott Gottlieb was sworn in as the 23rd Commissioner of Food and Drug Administration in 2017, and provided a keynote speech at the NORD Rare Summit shortly thereafter. 2018 …
Read morePublished May 21, 2018 by NORD
We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! …
Continue reading “Save the Date for NORD’s 2018 Rare Summit”
Read morePublished April 25, 2018 by NORD
Richard Pazdur, M.D. is the Director of the Food and Drug Administration’s Oncology Center of Excellence (OCE), which leverages the combined skills of the FDA’s regulatory scientists and reviewers with …
Continue reading “Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree”
Read morePublished February 6, 2018 by NORD
Washington, D.C., February 6, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today joined 37 patient and provider organizations in …
Continue reading “NORD Sends Letter to House of Representatives on Right to Try Act”
Read morePublished January 26, 2018 by NORD
Washington, D.C., January 26, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the …
Continue reading “NORD Issues Statement on Confirmation of New Secretary of HHS, Alex Azar”
Read morePublished November 10, 2017 by NORD
Washington, D.C., November 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished August 31, 2017 by NORD
In an action the rare disease community has been eagerly awaiting, the Food and Drug Administration (FDA) has announced the first-ever approval of a gene therapy in the U.S. The …
Continue reading “FDA Announces First Gene Therapy in U.S.”
Read morePublished August 15, 2017 by NORD
Register now for the NORD Rare Summit to advance the dialogue on issues of unprecedented importance to the rare disease community.
Read morePublished July 20, 2017 by NORD
Washington, D.C. July 19, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced two keynote …
Read morePublished August 18, 2016 by NORD
Researchers have the opportunity to present research to a large and diverse audience during the 2016 #NORDSummit
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