Advance the Dialogue at the NORD Rare Summit
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Register now for the NORD Rare Summit to advance the dialogue on issues of unprecedented importance to the rare disease community.
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Published August 15, 2017 by NORD
Register now for the NORD Rare Summit to advance the dialogue on issues of unprecedented importance to the rare disease community.
Read morePublished July 20, 2017 by NORD
Washington, D.C. July 19, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced two keynote …
Read morePublished August 18, 2016 by NORD
Researchers have the opportunity to present research to a large and diverse audience during the 2016 #NORDSummit
Read morePublished May 23, 2016 by NORD
NORD’s Rare Diseases and Orphan Products Breakthrough Summit will be held in Arlington, VA October 17-18
Read morePublished May 12, 2016 by NORD
The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community. …
Continue reading “NORD to Hold Rare Diseases Roundtable”
Read morePublished April 28, 2016 by NORD
WASHINGTON, D.C./BOSTON ― April 28, 2016 ―The National Organization for Rare Disorders (NORD), the country’s leading voice for the rare disease patient community, is collaborating with Trio Health to leverage …
Read morePublished April 7, 2016 by NORD
Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day®. This is the one day that everyone comes together globally to …
Continue reading “Introducing the 2016 Rare Disease Day® Highlights Video”
Read morePublished March 1, 2016 by NORD
The Rare Neurological Disease Special Report™ was published on Rare Disease Day® in collaboration with the National Organization for Rare Disorders (NORD) as a supplement to the February 2016 issue …
Continue reading “Neurology Reviews Publishes The Rare Neurological Diseaes Special Report”
Read morePublished December 17, 2015 by NORD
On February 29, millions of people worldwide will come together to raise awareness about rare diseases and their impact on patients’ lives. This is our day to be heard, so speak up and tell your elected officials about what it is like to live rare.
Read morePublished December 2, 2015 by NORD
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …
Continue reading “Be a Hero: Help NORD Educate Current and Future Medical Professionals”
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