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December 17, 2020

TOPIC: Featured News, Patients & Members, Advocacy, #NORDintheNews

STAT Features NORD in Article on the Continued Threat PPE Shortages Pose to Some Rare Disease Patients

Posted at December 12, 2020 01:09 pm by Valaree DonFrancesco

In a 12.16.2020 article from STAT on how shortages of protective gear pose a continued threat to some rare disease patients, NORD’s COVID-19 Community Survey Report is highlighted and NE Rare Action Network’s Aimee Guarnieri and NY Rare Action Network’s Mary Wooten are interviewed. Also interviewed in the piece is Lauren Ruotolo, president of the Read More

November 20, 2020

TOPIC: Featured News, #NORDintheNews

Connecticut Magazine Features NORD in Article on CT Nonprofits

Posted at November 11, 2020 09:38 am by Valaree DonFrancesco

On 11.19.20 in an article entitled “Ways to Make Your Donated Money and Goods Go Further,” Connecticut magazine included NORD in their list of ten Connecticut-based nonprofits that have each earned four stars from charity-assessment monitor Charity Navigator.



November 13, 2020

TOPIC: Featured News, Medical, Advocacy, #NORDintheNews

Telehealth Report from NORD Covered in Managed Healthcare Executive

Posted at November 11, 2020 02:21 pm by Valaree DonFrancesco

NORD’s recent telehealth report was featured in an article in Managed Healthcare Executive, a digital magazine from MJH Life Sciences, on 11.12.2020:

“The federal government took important steps to temporarily expand coverage for telehealth services during the pandemic, including removing barriers for Medicare patients. Plus, most states are allowing out-of-state healthcare providers in good standing to practice telehealth across state… Read More

October 15, 2020

TOPIC: Featured News, Patients & Members, #NORDintheNews

NORD mentioned, RareInsights fact sheet featured in Psychology Today article

Posted at October 10, 2020 10:16 am by Valaree DonFrancesco

A new article on, “People with Rare Diseases Need Better Social Support,” examines a new study that shows which types of support most benefit those with rare diseases. NORD is mentioned in the article and our RareInsights rare disease factsheet (see above) is prominently featured.



August 12, 2020

TOPIC: Featured News, #NORDintheNews

NORD Included in Article on Rare Autoimmune Diseases

Posted at August 8, 2020 11:09 am by Valaree DonFrancesco


NORD is mentioned as an information source in “10 Rare Autoimmune Diseases That Don’t Get Enough Attention,” an article appearing in’s “Healthy Now” column today. is the official site of Parade, the most widely read magazine in the US. The site receives over 4 million visits each month.

Read the article here.