Published October 21, 2025 by NORD
Oct. 21, 2025 — U.S. Senator Amy Klobuchar joined the National Organization for Rare Disorders (NORD®) Rare Diseases & Orphan Products Breakthrough Summit® today, offering encouragement to an audience of …
Continue reading “Senator Amy Klobuchar Joins Rare Disease Community at National Gathering”
Read morePublished September 8, 2025 by NORD
Over $80,000 in Funding Supports Innovative Studies Targeting Two Critically Underserved Conditions The National Organization for Rare Disorders (NORD®) has awarded more than $82,000 in seed funding to two international …
Continue reading “NORD Awards 2025 Seed Grants to Advance Breakthroughs in Rare Disease Research”
Read morePublished August 25, 2025 by NORD
“From Records to Research” empowers patients, caregivers to take control of their health The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans …
Continue reading “NORD Unveils New, Free Data Literacy Course”
Read morePublished August 21, 2025 by NORD
WASHINGTON, D.C., Aug. 21, 2025 — The future of rare disease care and innovation will take center stage in the nation’s capital this fall. The National Organization for Rare Disorders …
Read morePublished August 13, 2025 by NORD
The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans with rare diseases, announced five new requests for proposals (RFPs) totaling $245,000 in seed …
Read morePublished July 22, 2025 by NORD
QUINCY, Mass., July 22, 2025—The National Organization for Rare Disorders (NORD®), a leading rare disease nonprofit patient advocacy organization, welcomes two new members to the Board of Directors: Steven Mah, …
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Read morePublished July 16, 2025 by NORD
Annual Awards Celebrate Outstanding Contributions to Rare Disease Treatments, Advocacy, and Research QUINCY, Mass., July 16, 2025—The National Organization for Rare Disorders (NORD®) is honoring a distinguished group of industry …
Read morePublished June 5, 2025 by NORD
QUINCY, Mass., June 5, 2025 – The National Organization for Rare Disorders (NORD®) proudly announces a major milestone: for the first time, patient data collected through the NORD IAMRARE® patient …
Read morePublished February 27, 2025 by NORD
Paramount to match funds donated to NORD in support of new film Novocaine QUINCY, Mass., Feb. 27, 2025 — The National Organization for Rare Disorders (NORD®) is teaming up with Paramount Pictures …
Continue reading “NORD, Paramount Pictures Join Forces to Raise Awareness of Rare Disease”
Read morePublished February 19, 2025 by NORD
Expanded Medicaid/CHIP Continuous Eligibility for Children, Step Therapy Reforms, andOut-of-Pocket Prescription Cost Protections Among 2024 State Improvements Feb. 19, 2025, Washington, D.C. — The National Organization for Rare Disorders (NORD®) today issued …
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