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December 22, 2021

TOPIC: NORDPod

Dr. Edward Neilan: NORD’s Chief Medical and Scientific Officer

Posted at December 12, 2021 05:00 am by Valaree DonFrancesco

On the show today, we welcome Dr. Edward Neilan, NORD’s own Chief Medical and Scientific Officer. In this role, Ed oversees medical and research initiatives, including the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) program that NORD established in partnership with FDA and the Critical Path Institute (C-Path) He carries… Read More

December 8, 2021

TOPIC: NORDPod

The 2021 NORD Breakthrough Summit

Posted at December 12, 2021 05:00 am by Valaree DonFrancesco

Today’s extra-long, extra-special BONUS episode is brought to you from the 2021 NORD Breakthrough Summit. Every year, NORD hosts its flagship conference in October to discuss what’s new, relevant, and on the horizon in the rare disease space. The session we’re featuring is “Designing Trials for Inclusivity, Equity, and Engagement,” The discussion addresses health care inequities and what we… Read More

April 30, 2020

TOPIC: NORDPod

Welcome to NORDpod (Teaser)

Posted at April 4, 2020 03:47 pm by Valaree DonFrancesco

Welcome to NORDpod™, the voice of rare disease and the official podcast of The National Organization of Rare Disorders (NORD®), a 501(c)(3) patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. We are one community, and, together, our voices are louder. Learn more about NORD at Read More