Rare Disease News

NORD Opens Applications for Two New Patient Registry Projects

Published October 21, 2026 by NORD

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Two New Patient Registries to Be Implemented on NORD’s IAMRARE® Platform with support from the Critical Path Institute. NORWELL, Mass., Oct. 21, 2026 — The National Organization for Rare Disorders …

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NORD Launches New RFP for Patient Registries

Published November 14, 2025 by NORD

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Implementation of two new patient registries on the IAMRARE® platform funded by RDCA-DAP® DANBURY, Conn., Nov. 14, 2025 — The National Organization for Rare Disorders (NORD®), a leading national nonprofit …

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Request for Applications: New Patient Registries

Published November 18, 2022 by NORD

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The National Organization for Rare Disorders (NORD) announces a request for applications for the implementation of up to four new patient registries on the IAMRARE platform. Funding is made available …

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Rare Disease News

NORD Opens Applications for Two New Patient Registry Projects

NORD Launches New RFP for Patient Registries

Request for Applications: New Patient Registries

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