TOPIC: Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Research
We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.
TOPIC: Advocacy, Featured News, Patient Stories, Patients & Members
For 35 years, NORD has been leading the fight to improve the lives of patients and families with rare diseases. We do this by supporting patients and organizations, accelerating research, providing education, disseminating information, raising public awareness, and driving public policy. The following are 35 examples of how NORD provides service to all of the rare disease community, including… Read More
TOPIC: Events, Featured News, Get Involved, Medical, Patient Stories, Patients & Members
Dr. Robert M. Campbell, Jr. is Director of the Center for Thoracic Insufficiency Syndrome (CTIS) and an Attending Physician in the Division of Orthopaedic Surgery at Children’s Hospital of Philadelphia (CHOP). He is best… Read More
TOPIC: Advocacy, Featured News, Get Involved, Patient Stories, Patients & Members
The GBS|CIDP Foundation International, one of the first member organizations of NORD, works towards a future when no one with Guillain-Barre syndrome… Read More
TOPIC: Advocacy, Featured News, Get Involved, Patient Stories, Patients & Members
Patrick Dunegan and his wife, Jennifer, met at church, spending time together serving their local community as Kentucky Colonels and through volunteer work with the Jewish Hospital of Louisville. Each Friday, Patrick and Jennifer volunteer at… Read More
