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May 21, 2018

TOPIC: Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Research

Save the Date for NORD’s 2018 Rare Summit

Posted at May 5, 2018 03:36 pm by Christina Jensen

We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.


Rare Diseases &… Read More

May 4, 2018

TOPIC: Advocacy, Featured News, Patient Stories, Patients & Members

35 Ways and Growing: NORD’s Service to the Rare Disease Community

Posted at May 5, 2018 11:10 am by Laura Mullen

For 35 years, NORD has been leading the fight to improve the lives of patients and families with rare diseases. We do this by supporting patients and organizations, accelerating research, providing education, disseminating information, raising public awareness, and driving public policy. The following are 35 examples of how NORD provides service to all of the rare disease community, including… Read More

April 25, 2018

TOPIC: Events, Featured News, Get Involved, Medical, Patient Stories, Patients & Members

Robert Campbell, Jr., M.D.: 2018 Lifetime Achievement Award Honoree

Posted at April 4, 2018 01:24 pm by Christina Jensen

Dr. Robert M. Campbell, Jr. is Director of the Center for Thoracic Insufficiency Syndrome (CTIS) and an Attending Physician in the Division of Orthopaedic Surgery at Children’s Hospital of Philadelphia (CHOP). He is best… Read More

April 25, 2018

TOPIC: Advocacy, Featured News, Get Involved, Patient Stories, Patients & Members

Estelle Benson, Founder of GBS|CIDP Foundation International: Abbey S. Meyers Leadership Award Honoree

Posted at April 4, 2018 01:15 pm by Christina Jensen

The GBS|CIDP Foundation International, one of the first member organizations of NORD, works towards a future when no one with Guillain-Barre syndrome… Read More

April 25, 2018

TOPIC: Advocacy, Featured News, Get Involved, Patient Stories, Patients & Members

Patrick Dunegan: 2018 Rare Impact Award Honoree

Posted at April 4, 2018 01:00 pm by Christina Jensen

Patrick Dunegan and his wife, Jennifer, met at church, spending time together serving their local community as Kentucky Colonels and through volunteer work with the Jewish Hospital of Louisville. Each Friday, Patrick and Jennifer volunteer at… Read More