Published October 1, 2019 by NORD
My name is Lauren, I’m 23 years old and I live in Boston, MA. Two years ago, before my senior year at college, I was given the news that nobody …
Continue reading “Voices of Rare Cancer: Lauren’s Story”
Read morePublished September 27, 2019 by NORD
My name is Nicole and I was diagnosed with Stage 3 sarcoma cancer in July 2017 at the age of 27. It was bizarre being diagnosed with cancer in the …
Continue reading “Voices of Rare Cancer: Nicole’s story”
Read morePublished September 25, 2019 by NORD
NORD President and CEO Peter L. Saltonstall has some breaking news to share on the city we are taking the Living Rare, Living Stronger: NORD Patient and Family Forum to …
Read morePublished September 20, 2019 by NORD
Graeleigh was diagnosed with fibrolamellar after a long battle with stomachaches. First the stomachaches started out sporadically but by the time she was diagnosed they where becoming chronic, happening almost …
Continue reading “Voices of Rare Cancer: Graeleigh’s Story”
Read morePublished September 16, 2019 by NORD
Seven new videos have been added to the NORD Rare Disease Video Library, a unique educational resource launched earlier this summer. The library features videos on rare diseases and related …
Continue reading “NORD Expands Rare Disease Video Library”
Read morePublished July 11, 2019 by NORD
NORD and the Foundation for Rare Blood Diseases (SZB) invite you to register for an externally-led Patient Focused Drug Development (EL-PFDD) meeting on Pyruvate Kinase deficiency (PKD), taking place Friday, …
Read morePublished July 9, 2019 by NORD
The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has added a new video to the NORD Rare …
Continue reading “New Video on PTLD Added to NORD Rare Disease Video Library”
Read morePublished July 2, 2019 by NORD
The time is now…register today!
Read morePublished June 27, 2019 by NORD
We would like to extend our sincerest thanks to all those who joined us during the Living Rare, Living Stronger NORD Patient & Family Forum, June 21-23 in Houston. Over …
Continue reading “NORD’s 2019 Living Rare, Living Stronger Weekend Highlights”
Read morePublished June 19, 2019 by NORD
New video library launched with funding from Incyte Washington, DC, June 19, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living …
Continue reading “The NORD Rare Disease Video Library Offers New Educational Resources”
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