January 18, 2019
TOPIC: Featured News, Get Involved, Patient Stories, Rare Disease Day
Posted at January 1, 2019 11:58 am by Christina Jensen
NORD’s Educational Initiatives team spoke with Scarlett Eagle, an undergraduate student at Iowa State University and NORD Students for Rare Club Leader. In this interview, Scarlett talks about her inspiration for starting a NORD Students for Rare Club and where she hopes to see her career go working within the rare disease community.
For more information on NORD’s… Read More
January 16, 2019
TOPIC: Advocacy, Events, Featured News, Patients & Members, Press Releases, Rare Disease Day, Sticky Posts for Homepage
Posted at January 1, 2019 10:45 am by Christina Jensen
Washington, DC, January 16, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced a new campaign for Rare Disease Day centering on three simple words: Show Your Stripes, with a call to action for people to literally and figuratively “show their stripes” in… Read More
January 8, 2019
TOPIC: Advocacy, Featured News, Rare Disease Day
Posted at January 1, 2019 12:40 pm by Christina Jensen
Each year on the last day of February, the rare disease community comes together on Rare Disease Day to raise awareness for millions of people who are impacted by rare diseases.
This year’s Rare Disease Day is just 51 days away! As the Official U.S. sponsor, NORD rallies rare disease advocates, patients and… Read More
December 20, 2018
TOPIC: Advocacy, Events, Featured News, Get Involved, Rare Disease Day
Posted at December 12, 2018 09:35 am by Christina Jensen
Every year, individuals around the globe come together for one special day to recognize and raise awareness for rare diseases. This day, Rare Disease Day® (RDD), takes place on the last day of February each year. The next RDD will fall on February 28, 2019.
Together, we can raise the profile of rare diseases and the issues that our community… Read More