Rare Disease News

Rare Disease Day 2019 Notes and Successes

Published March 6, 2019 by NORD

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Your stripes were shown! See how the rare disease community worked together to make Rare Disease Day 2019 reach the world at large!

Astellas Recognizes Rare Disease Day

Published February 28, 2019 by NORD

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Rare Disease Day

Astellas is proud to support Rare Disease Day and is actively committed to raising awareness about rare diseases and their impact on patients, their families and caregivers. Astellas’ dedication to patients …

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Connor’s Story in Honor of Rare Disease Day

Published February 25, 2019 by NORD

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The following story was submitted by Katia Luedtke in honor of Rare Disease Day. In this story, Katia shares her family’s journey of searching for and receiving a diagnosis for …

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Rare Disease Day is a Global Movement

Published February 13, 2019 by NORD

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Rare Disease Day

NORD marks 10 years as official U.S. Rare Disease Day sponsor Since the Rare Disease Day campaign was first launched internationally by EURORDIS and its Council of National Alliances in …

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India’s Story in Honor of Rare Disease Day

Published February 12, 2019 by NORD

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The following story was submitted by Sarah Stuker in honor of Rare Disease Day. In this story, Sarah shares her family’s journey of searching for and receiving a diagnosis for …

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McCarthy Story in Honor of Rare Disease Day

Published February 12, 2019 by NORD

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The following story was submitted by Lindsey McCarthy in honor of Rare Disease Day. In this story, Lindsey shares her family’s journey of receiving a diagnosis for their son, James, …

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Apellis Pharmaceuticals Recognizes Rare Disease Day

Published February 11, 2019 by NORD

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Rare Disease Day

Apellis Pharmaceuticals is a clinical-stage biopharmaceutical company focused on the development of novel therapeutic compounds for the treatment of a broad range of life-threatening or debilitating rare diseases through the …

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Brazeau Family Story for Rare Disease Day

Published February 1, 2019 by NORD

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The following story was submitted by Kirk Brazeau in honor of Rare Disease Day. In this story, Kirk shares his family’s journey of receiving a diagnosis for their son, Archer, …

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10 Ways to Show Your Stripes this Rare Disease Day!

Published January 23, 2019 by NORD

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The zebra, with its distinctive stripes, is the official symbol of rare diseases in the United States. While each of the more than 7,000 rare diseases is unique, there are …

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Featured Student: Scarlett Eagle

Published January 18, 2019 by NORD

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NORD’s Educational Initiatives team spoke with Scarlett Eagle, an undergraduate student at Iowa State University and NORD Students for Rare Club Leader. In this interview, Scarlett talks about her inspiration …

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