NORD Developing 20 Natural History Studies for 20 Rare Diseases
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NORD to Build and Launch 20 Natural History Studies Based on Lottery System
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Published December 9, 2015 by NORD
NORD to Build and Launch 20 Natural History Studies Based on Lottery System
Read morePublished December 4, 2015 by NORD
Sudden Infant Death Syndrome (SIDS) is the latest rare disease to have trended on Facebook, following the release of a new study in Pediatrics journal on December 2. The study says that …
Continue reading “New SIDS Study Says Other Factors May Increase Risk”
Read morePublished December 2, 2015 by NORD
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …
Continue reading “Be a Hero: Help NORD Educate Current and Future Medical Professionals”
Read morePublished October 12, 2015 by NORD
Date: February 29, 2016 Global Theme: Patient Voice Global Slogan: Join us in making the voice of rare diseases heard By definition, each rare disease affects a small segment of …
Continue reading “Raise Your Voice: Rare Disease Day 2016 is Coming”
Read morePublished October 5, 2015 by NORD
While the approximately 7,000 known rare diseases run the full spectrum of symptoms and experience, rare disease patients encounter many common obstacles. Rare patients face incredible difficulty finding safe and …
Continue reading “The Undiagnosed: Orphans of the Rare Disease Community”
Read morePublished September 24, 2015 by NORD
Von Hippel-Lindau disease (VHL)
Read morePublished September 16, 2015 by NORD
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …
Continue reading “Rare Disease Day 2016 Theme and Slogan Announced!”
Read morePublished July 16, 2015 by NORD
Training Program for Patients and Caregivers Will Be Offered at NORD’s Annual Rare Diseases and Orphan Products Breakthrough Summit in October An award from the Patient-Centered Outcomes Research Institute (PCORI) …
Read morePublished July 15, 2015 by NORD
The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cures of rare diseases, has announced the availability of new research grants to …
Read morePublished June 17, 2015 by NORD
Today, the National Organization for Rare Disorders (NORD), Biotechnology Industry Organization (BIO), and Ernst & Young released “Impact of the Orphan Drug Tax Credit on Treatments for Rare Diseases,” …
Continue reading “Impact of the Orphan Drug Tax Credit on Treatments for Rare Diseases”
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