The Will to Live and the Strength for a Cure
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life
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Published December 23, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life
Read morePublished December 23, 2014 by NORD
Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer in her …
Continue reading “Multiple Endocrine Neoplasia Type 1: One Family’s Fight”
Read morePublished December 23, 2014 by NORD
On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …
Continue reading “Taking Action for ACD”
Read morePublished December 18, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about…
Read morePublished November 25, 2014 by NORD
Join us on May 2015 in Washington DC to celebrate the successes of the rare disease community.
Read morePublished November 25, 2014 by NORD
NORD launches the nation’s only Rare advocacy network.
Read morePublished November 5, 2014 by NORD
Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer in her …
Continue reading “Multiple Endocrine Neoplasia Type 1: One Family’s Fight”
Read morePublished October 7, 2014 by NORD
On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …
Continue reading “Taking Action for ACD”
Read morePublished September 25, 2014 by NORD
It’s truly amazing to hear everyone’s unique personal story on why medical research is important to them. Whether it’s a parent whose son or daughter is living with a rare …
Continue reading “Medical Research Should Be Everyone’s Priority”
Read morePublished September 16, 2014 by NORD
Editor’s note: The following blog is being published to highlight Blood Cancer Awareness Month and MPN Awareness Day. I was diagnosed with essential thrombocythemia (ET) at age 16 after …
Continue reading “Living with Blood Cancer”
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