New Research Funding Opportunities Available from NORD
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All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018
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Published May 24, 2018 by NORD
All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018
Read morePublished May 21, 2018 by NORD
We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! …
Continue reading “Save the Date for NORD’s 2018 Rare Summit”
Read morePublished March 2, 2018 by NORD
*The following is a a guest blog posting by NORD’s Director of Research Programs, Vanessa Boulanger, originally published 2/28/18 on PCORI.org at https://www.pcori.org/blog/changing-landscape-rare-disease-research?utm_source=general` A rare disease, by definition, affects …
Continue reading “Changing the Landscape of Rare Disease Research”
Read morePublished February 8, 2018 by NORD
The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced the availability of three research grants …
Continue reading “Current Funding Opportunity: NORD Research Grants for Rare Diseases”
Read morePublished December 20, 2017 by NORD
Washington, D.C., December 20, 2017 – The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced …
Continue reading “NORD Awards Five New Grants for Rare Disease Research”
Read morePublished November 13, 2017 by NORD
Washington, D.C., November 13, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Li-Fraumeni …
Continue reading “NORD Publishes New Educational Resource on Li-Fraumeni Syndrome”
Read morePublished November 10, 2017 by NORD
Washington, D.C., November 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Read morePublished October 5, 2017 by NORD
Washington, D.C., October 5, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on RYR-1-Related …
Continue reading “NORD Publishes New Report on RYR-1 Related Diseases”
Read morePublished August 31, 2017 by NORD
In an action the rare disease community has been eagerly awaiting, the Food and Drug Administration (FDA) has announced the first-ever approval of a gene therapy in the U.S. The …
Continue reading “FDA Announces First Gene Therapy in U.S.”
Read morePublished July 25, 2017 by NORD
Washington, D.C., July 25, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Retinal …
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