Penn State Graduate Rare Disorder Survey
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Please take a moment to help PSU graduate student, Kerri, make a change for the rare disease community.
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Published September 12, 2016 by NORD
Please take a moment to help PSU graduate student, Kerri, make a change for the rare disease community.
Read morePublished August 16, 2016 by NORD
NORD research grants are made possible by donations. Request for Proposals are now available online.
Read morePublished May 23, 2016 by NORD
Learn more about the Undiagnosed Diseases Network (UDN) by registering for this free webinar (June 3).
Read morePublished May 23, 2016 by NORD
NORD’s Rare Diseases and Orphan Products Breakthrough Summit will be held in Arlington, VA October 17-18
Read morePublished May 12, 2016 by NORD
The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community. …
Continue reading “NORD to Hold Rare Diseases Roundtable”
Read morePublished April 28, 2016 by NORD
WASHINGTON, D.C./BOSTON ― April 28, 2016 ―The National Organization for Rare Disorders (NORD), the country’s leading voice for the rare disease patient community, is collaborating with Trio Health to leverage …
Read morePublished April 19, 2016 by NORD
Twenty rare disease patient groups have been chosen to develop natural history studies with the assistance of the National Organization for Rare Disorders (NORD) supported in part by a cooperative …
Read morePublished March 1, 2016 by NORD
The Rare Neurological Disease Special Report™ was published on Rare Disease Day® in collaboration with the National Organization for Rare Disorders (NORD) as a supplement to the February 2016 issue …
Continue reading “Neurology Reviews Publishes The Rare Neurological Diseaes Special Report”
Read morePublished February 18, 2016 by NORD
The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded six new research grants to fund rare …
Continue reading “NORD Awards New Research Grants for Rare Disease Research”
Read morePublished December 17, 2015 by NORD
On February 29, millions of people worldwide will come together to raise awareness about rare diseases and their impact on patients’ lives. This is our day to be heard, so speak up and tell your elected officials about what it is like to live rare.
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Your gift today fuels progress in the lab, in clinics, on Capitol Hill and for rare families who can’t wait another year for answers.
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