Published August 15, 2023 by NORD
Three New RFPs Now Open for Qualified Researchers of AVM, LYS, and MMIHS Today, the National Organization for Rare Disorders (NORD®) announced three new grant funding opportunities related to the …
Read morePublished July 7, 2023 by NORD
Today, the National Organization for Rare Disorders (NORD) and the APS Type 1 Foundation, a NORD member organization, announced the awarding of a $50,000 grant for research into this rare …
Read morePublished June 27, 2023 by NORD
WASHINGTON, DC, and ALBANY, N.Y., June 27, 2023 – The Galactosemia Foundation and the National Organization for Rare Disorders (NORD)® today announced they have jointly published the galactosemia community’s first …
Read morePublished March 28, 2023 by NORD
The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP®) is an integrated database and analytics hub developed by Critical Path Institute (C-Path) and NORD through a collaborative grant from the …
Read morePublished March 1, 2023 by NORD
Three years ago, Jeffrey Kramer made a promise to his daughter as she bravely battled the rare bone cancer Chondrosarcoma. Today, he is taking an important step in honoring that …
Continue reading “New Registry Creates a Platform for Sharing Information About Chondrosarcoma”
Read morePublished September 21, 2022 by NORD
Since 1989, NORD has awarded over 200 grants totaling over $9 million in approved funding September 21, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced …
Continue reading “NORD Opens Applications for Three New Rare Disease Research Grants”
Read morePublished August 30, 2022 by NORD
Annie Achee is the President and Community Education/Research Liaison of the National Leiomyosarcoma Foundation (NLMSF). Leiomyosarcoma is a rare sarcoma (cancer) that originates in smooth tissue (including fat, muscle, nerves, …
Continue reading “Head of the Herd: Annie Achee, National Leiomyosarcoma Foundation (NLMSF)”
Read morePublished April 29, 2022 by NORD
Three RFPs Now Open for Qualified Researchers through NORD’s Jayne Holtzer Rare Disease Research Grants Program April 29, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) …
Continue reading “NORD Announces over $100,000 in Grant Funding Available for Rare Disease Research”
Read morePublished December 20, 2021 by NORD
In November, NORD announced the launch of its Rare Disease Centers of Excellence program, which aims to improve medical care for people living with rare diseases. The program has ambitious …
Read morePublished December 17, 2021 by NORD
NORD, in partnership with the Critical Path Institute (C-Path) is proud to announce a two-part video series on patient-focused drug development (PFDD) as part of our Rare Disease Cures Accelerator-Data …
Continue reading “The Importance of Patient Voices and Data Analytics”
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