March 20, 2019
TOPIC: Get Involved, Patients & Members, Sticky Posts for Homepage
Hear from NORD’s registry community
Posted at March 3, 2019 11:03 am by Christina Jensen
During the 2018 Rare Diseases & Orphan Products Breakthrough Summit, NORD spoke with its IAMRARE registry users to get their thoughts on how their patient registries are benefiting their communities and how they are able to use the data. See the videos below and on our Youtube channel here.