Scroll
To Top

January 7, 2020

TOPIC: Featured News, Patients & Members, Sticky Posts for Homepage

NORD Survey to Better Understand Rare Disease Diagnosis, Care and Treatment in the US: Take Part in Our 30 Year Follow-up

Posted at January 1, 2020 08:08 am by Laura Mullen

At NORD, our priority is advancing rare disease research and innovation by working together to overcome critical challenges. The input of patients and caregivers plays an integral role in getting beyond obstacles and moving towards a brighter future for the rare disease community.

In… Read More

November 14, 2019

TOPIC: Featured News, Patients & Members, Sticky Posts for Homepage

NORD Survey to Better Understand Rare Disease Diagnosis, Care and Treatment in the US: Take Part in Our 30 Year Follow-up

Posted at November 11, 2019 06:12 am by Laura Mullen

At NORD, we know that patient-powered initiatives change the world. Our priority is advancing rare disease research and innovation by working together to overcome critical challenges. 

In 1989 and again in 2003, NORD conducted a survey to better understand the barriers and facilitators of rare disease… Read More

October 4, 2019

TOPIC: Sticky Posts for Homepage, Sticky Posts for Patients and Families

NORD Patient Assistance Program for 2020

Posted at October 10, 2019 07:00 am by Valaree DonFrancesco

NORD is glad to have been able to assist you in accessing care and treatment for your rare disorder in 2019. If you need continued assistance in 2020, it’s time to re-enroll. Programs will be opening on a rolling basis. Please look out for re-enrollment communications in your email and mail this month and in coming months… Read More