New Jersey Center for Rare Disorders at Rutgers/Robert Wood Johnson University Hospital
- New Jersey
Director(s): Sabahat Bokhari, MD, Naveena Yanamala, PhD, MS
Contact information
New Jersey Center for Rare Disorders at Rutgers/RWJUH
“NJ Rare: Bridging Disciplines. Transforming Lives.”
The New Jersey Center for Rare Disorders serves as a hub for innovation, discovery, and compassionate care. Anchored in Cardiology and extending through collaborative spokes in Rheumatology, Endocrinology, Pulmonology, Hematology, Neurology, Oncology, and Genetics, the Center unites experts across disciplines to decode the most complex diseases. Through precision imaging, biomarker discovery, clinical trials, and data-driven research, we aim to accelerate diagnosis, pioneer novel therapies, and empower every patient and family touched by a rare condition. Together, we’re building a future where no disease is too rare to understand—and no patient too rare to be seen.
Serves: children and adults
Email: [email protected]
1-855-788-7273
Cardiac Amyloidosis Center of Excellence
Serves adults
Specialist: Sabahat Bokhari, MD
Program Coordinator: Nidara Fields-Hill, MPA
+1-732-418-8055
Cardiac Sarcoidosis Center of Excellence
Serves adults
Specialist: Sabahat Bokhari, MD
Program Coordinator: Nidara Fields-Hill, MPA
+1-732-418-8055
Cardiac Fabry’s Center of Excellence
Serves: children and adults
Specialist(s): Sabahat Bokhari, MD & Milen T. Velinov, MD, PhD
Program Coordinator: Nidara Fields-Hill, MPA
+1-732-418-8055
Financial Assistance Information:
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Robert Wood Johnson University HospitalPayment Plans and Financial Assistance
(800) 905-1484; HOURS: 8:15 AM –3:00 PM ET (Appointment required) Visit website -
New Jersey HealthNJ Charity Care
•Toll free: 1-866-588-5696 • Local: 609-292-4709 • Local: 609-292-4715 (se habla Español); HOURS: 9am-5pm ET Monday through Friday Visit website
