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Jul. 16, 2020

TOPIC: Press Releases, Featured News, Patients & Members, RareLaunch

CZI Grants to NORD and EURORDIS Support Organizational Capacity Building and Rare Disease Day Campaigns

Posted by Valaree DonFrancesco

Today, the Chan Zuckerberg Initiative (CZI) announced $1.3 million in funding to support the global rare disease community through two distinct grants to NORD and EURORDIS-Rare Diseases Europe. These grants will support organizational capacity building programs and awareness campaigns for Rare Disease Day, respectively, and are part of CZI’s Rare As One Project, aimed at supporting the work that patient communities are doing to accelerate research and drive progress in the fight against rare diseases.

“With these new grants, we’re honored to partner with two organizations that are dedicated to improving the lives of millions of individuals living with rare disease,” said Tania Simoncelli, CZI Science Policy Director and Rare As One Project lead. “NORD and EURORDIS are leaders in the rare disease community and provide critical support, training, and mentorship for their member organizations. As we fight Covid-19, it is more important than ever to support their efforts to lift up patient advocates and strengthen rare disease organizations, many of whom are vulnerable during this uncertain time.”

Read the announcement in its entirety here.